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March 2015: A second draft of the LTC questionnaire has been developed, following cognitive interviews with people with long-term conditions and consultation with members of the QORU Public Involvement Implementation Group. 

During March-May 2015, further consultation with professional stakeholders and cognitive interviews with people with long-term conditions will be carried out.

January 2016: Ongoing, the mail-out survey is underway. Participants are currently being recruited through primary care. Further participants will also be sourced through social care.

November 2016: The mail out survey has been completed and analysis is underway.

If you are interested in hearing more about this research, or have any questions, please contact Caroline Potter on Freephone 0800 1383009 or email ltc-prom@dph.ox.ac.uk

Reports and publications

The research team have presented initial findings from the Living with Long-term Conditions project to local audiences (NIHR CLAHRC Oxford and the Nuffield Department of Population Health, University of Oxford).

They have also presented at national and international conferences:

  • Potter C, Hunter C, Kelly L, Gibbons E, Forder J, Coulter A, Fitzpatrick R, Peters M. PROs for personalized care: patient perspectives on potential use of the Long-Term Conditions Questionnaire (LTCQ) in clinical practice. 23rd Annual Conference of the International Society for Quality of Life Research; 19-22 October 2016; Copenhagen; 2016. (3068).

To view the presentation please click here 

  • Potter C, Geneen L, Kelly L, Gibbons E, Jenkinson C, Coulter A, Forder J, Jones K, Batchelder L, Fitzpatrick R, Peters M. Validation of the Long-Term Conditions Questionnaire (LTCQ). 23rd Annual Conference of the International Society for Quality of Life Research; 19-22 October 2016; Copenhagen; 2016. (1098).

To view the presentation please click here 

  • Kelly L, Potter C, Hunter C, Gibbons E, Fitzpatrick R, Jenkinson C and Peters M. The use of patient and stakeholder opinion to refine items in the development of the Long-Term Conditions Questionnaire (LTCQ). Patient Reported Outcome Measure’s (PROMs) Conference Sheffield 2016: advances in patient reported outcomes research, Sheffield, UK. 9th June 2016

To view the presentation please click here 

  • Hunter C, Potter C, Kelly L, Jenkinson C, Forder J, Coulter A, Darlington A, Fitzpatrick R, Peters M. How could a Patient-Reported Outcome Measure (PROM) for Longterm Conditions (LTCs) improve Patient Care? Patients' and Health and Social Care Stakeholders' Perspectives. Society for Academic Primary Care 2015, 8-10 July 2015, Oxford.
  • Ray Fitzpatrick, Michele Peters Potter C, Hunter C, Kelly L, Gibbons E, Jenkinson C, Fitzpatrick R, Peters M. Refining Items in the Long-Term Conditions Questionnaire (LTCQ): Cognitive Interviews, Stakeholder Feedback and Translatability Assessment. 22nd Annual Conference of the International Society for Quality of Life Research; 21-24 October 2015; Vancouver; 2015. (1S) p. 142 – 3.
  • Potter C, Hunter C, Kelly L, Gibbons E, Forder J, Coulter A, Fitzpatrick R, Peters P. Where patients and policy meet: exploring individual-level use of the Long-Term Conditions Questionnaire (LTCQ). Patient Reported Outcome Measure’s (PROMs) Conference Sheffield 2016: advances in patient reported outcomes research, Sheffield, UK. 9th June 2016

To view the presentation please click here

  • Potter C, Hunter C, Kelly L, Gibbons E, Jenkinson C, Coulter A, Forder J, Towers A, Fitzpatrick R, Peters M. Item Generation for the Long-Term Conditions Questionnaire (LTCQ): Qualitative Interviews with Patients. 22nd Annual Conference of the International Society for Quality of Life Research; 21-24 October 2015; Vancouver; 2015. (S1) p. 162.

To view the presentation please click here

  • Michele Peters (presenter), C Potter, L Kelly, C Hunter, E Gibbons, J Forder, A-M Towers, C Jenkinson, A Coulter, R Fitzpatrick. The long-term conditions questionnaire (LTCQ): a patient-reported outcome measure. National PROMs Summit, Birmingham, 1st Dec 2015. 
  •  Hunter C, Fitzpatrick R, Darlington A, Forder J, Coulter C, Jenkinson C, Peters M. Enabling and supporting people to live with long-term conditions: Qualitative and conceptual development of a patient-reported outcome measure (PRO). 21st Annual Conference of the International Society for Quality of Life Research; 15-18 October; Berlin; 2014. (S23) p. 121 - 122 

To view the presentation please click here

  • Hunter C, Peters M, Darlington A, Forder J, Coulter A, Jenkinson C, Fitzpatrick R. Patient-reported outcome measures for long-term conditions: Conceptual review and stakeholder consultation. Health Services Research Network 2014, 19-20 June 2014, Nottingham

To view the presentation please click here

Peer reviewed papers

  • Kelly L, Potter C, Hunter C, Gibbons E, Fitzpatrick R, Jenkinson C, Peters M. Refinement of the Long-Term Conditions Questionnaire (LTCQ): patient and expert stakeholder opinion. Patient Related Outcome Measures 2016, 7, 183—193.

To access this paper click here

  • Peters M, Potter C, Kelly L, Hunter C, Gibbons E, Jenkinson C, Coulter A, Forder J, Towers A, A’Court C, Fitzpatrick R. The Long-Term Conditions Questionnaire (LTCQ): Conceptual framework and item development. Patient Related Outcome Measures 2016, 7, 109-125.

To access this paper click here 

  • Hunter C, Fitzpatrick R, Jenkinson C, Darlington A, Coulter A, Forder J, Peters M. Perspectives from health, social care and policy stakeholders on the value of a single self-report outcome measure across long-term conditions: a qualitative study. BMJ Open 2015, 5.

To access this paper click here  

Please contact Caroline Potter on Freephone 0800 1383009 or email ltc-prom@dph.ox.ac.uk, for further information.

Living with long-term conditions