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March 2015: A second draft of the LTC questionnaire was developed, following cognitive interviews with people with long-term conditions and consultation with members of the QORU Public Involvement Implementation Group. 

March-May 2015, Further consultation with professional stakeholders and cognitive interviews with people with long-term conditions carried out.

January 2016: Survey mail-out. Participants recruited through primary care. Further participants recruited through social care.

November 2016: Mail out of the survey completed and analysis is underway.

For more information on this research please contact Caroline Potter on Freephone 0800 1383009 or email ltc-prom@dph.ox.ac.uk

Reports and publications

The research team have presented initial findings from the Living with Long-term Conditions project to local audiences (NIHR CLAHRC Oxford and the Nuffield Department of Population Health, University of Oxford).

They have also presented at national and international conferences:

  • Potter C, Hunter C, Kelly L, Gibbons E, Forder J, Coulter A, Fitzpatrick R, Peters M. PROs for personalized care: patient perspectives on potential use of the Long-Term Conditions Questionnaire (LTCQ) in clinical practice. 23rd Annual Conference of the International Society for Quality of Life Research; 19-22 October 2016; Copenhagen; 2016. (3068). view presentation 
  • Potter C, Geneen L, Kelly L, Gibbons E, Jenkinson C, Coulter A, Forder J, Jones K, Batchelder L, Fitzpatrick R, Peters M. Validation of the Long-Term Conditions Questionnaire (LTCQ). 23rd Annual Conference of the International Society for Quality of Life Research; 19-22 October 2016; Copenhagen; 2016. (1098). 
    view presentation 
  • Kelly L, Potter C, Hunter C, Gibbons E, Fitzpatrick R, Jenkinson C and Peters M. The use of patient and stakeholder opinion to refine items in the development of the Long-Term Conditions Questionnaire (LTCQ). Patient Reported Outcome Measure’s (PROMs) Conference Sheffield 2016: advances in patient reported outcomes research, Sheffield, UK. 9th June 2016. view presentation 
  • Hunter C, Potter C, Kelly L, Jenkinson C, Forder J, Coulter A, Darlington A, Fitzpatrick R, Peters M. How could a Patient-Reported Outcome Measure (PROM) for Longterm Conditions (LTCs) improve Patient Care? Patients' and Health and Social Care Stakeholders' Perspectives. Society for Academic Primary Care 2015, 8-10 July 2015, Oxford.
  • Ray Fitzpatrick, Michele Peters Potter C, Hunter C, Kelly L, Gibbons E, Jenkinson C, Fitzpatrick R, Peters M. Refining Items in the Long-Term Conditions Questionnaire (LTCQ): Cognitive Interviews, Stakeholder Feedback and Translatability Assessment. 22nd Annual Conference of the International Society for Quality of Life Research; 21-24 October 2015; Vancouver; 2015. (1S) p. 142 – 3.
  • Potter C, Hunter C, Kelly L, Gibbons E, Forder J, Coulter A, Fitzpatrick R, Peters P. Where patients and policy meet: exploring individual-level use of the Long-Term Conditions Questionnaire (LTCQ). Patient Reported Outcome Measure’s (PROMs) Conference Sheffield 2016: advances in patient reported outcomes research, Sheffield, UK. 9th June 2016. view presentation
  • Potter C, Hunter C, Kelly L, Gibbons E, Jenkinson C, Coulter A, Forder J, Towers A, Fitzpatrick R, Peters M. Item Generation for the Long-Term Conditions Questionnaire (LTCQ): Qualitative Interviews with Patients. 22nd Annual Conference of the International Society for Quality of Life Research; 21-24 October 2015; Vancouver; 2015. (S1) p. 162. view presentation
  • Michele Peters (presenter), C Potter, L Kelly, C Hunter, E Gibbons, J Forder, A-M Towers, C Jenkinson, A Coulter, R Fitzpatrick. The long-term conditions questionnaire (LTCQ): a patient-reported outcome measure. National PROMs Summit, Birmingham, 1st Dec 2015. 
  •  Hunter C, Fitzpatrick R, Darlington A, Forder J, Coulter C, Jenkinson C, Peters M. Enabling and supporting people to live with long-term conditions: Qualitative and conceptual development of a patient-reported outcome measure (PRO). 21st Annual Conference of the International Society for Quality of Life Research; 15-18 October; Berlin; 2014. (S23) p. 121 - 122. view presentation
  • Hunter C, Peters M, Darlington A, Forder J, Coulter A, Jenkinson C, Fitzpatrick R. Patient-reported outcome measures for long-term conditions: Conceptual review and stakeholder consultation. Health Services Research Network 2014, 19-20 June 2014, Nottingham. view presentation

Peer reviewed papers

  • Kelly L, Potter C, Hunter C, Gibbons E, Fitzpatrick R, Jenkinson C, Peters M. Refinement of the Long-Term Conditions Questionnaire (LTCQ): patient and expert stakeholder opinion. Patient Related Outcome Measures 2016, 7, 183—193. view paper
  • Peters M, Potter C, Kelly L, Hunter C, Gibbons E, Jenkinson C, Coulter A, Forder J, Towers A, A’Court C, Fitzpatrick R. The Long-Term Conditions Questionnaire (LTCQ): Conceptual framework and item development. Patient Related Outcome Measures 2016, 7, 109-125. view paper 
  • Hunter C, Fitzpatrick R, Jenkinson C, Darlington A, Coulter A, Forder J, Peters M. Perspectives from health, social care and policy stakeholders on the value of a single self-report outcome measure across long-term conditions: a qualitative study. BMJ Open 2015, 5. view paper.