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Abstract

How should members of a liberal democratic political community, open to value pluralism, decide bioethical issues that generate deep disagreement? All too often, reasoned debate yields no answer equally acceptable to all participants and affected persons. One political means of reaching binding because authoritative decisions are majoritarian democratic institutions. A core feature of this means is proceduralism, the notion both that no rule is acceptable apart from a formal method, and that the acceptable method yields an acceptable rule. I argue that two procedures in particular can deliver “legitimate” bioethical decisions. I advance this argument in three steps. (1) I develop the thesis with the example of human germline gene editing. (2) I propose a general understanding of proceduralism, toward coping with the bioethical questions raised by germline engineering. (3) I combine two types of proceduralism toward deciding difficult bioethical issues: expert bioethics committees and deliberative democracy. I call this approach political bioethics on the claim that bioethics belongs to the political sphere where issues of regulation, legislation, and public policy are decided. Resolving such issues often involves decisions that cannot be “correct” but can be “procedurally legitimate.”

Forthcoming events

Methodological Issues in Nutritional Epidemiology and the Assessment of Preventable Mortality

Tuesday, 17 September 2019, 2pm to 3pm @ Richard Doll Lecture Theatre, Richard Doll Building, Old Road Campus, OX3 7LF

Mini-Symposium: Large prospective studies of diet and health: research in the Nuffield Department of Population Health

Tuesday, 17 September 2019, 3.30pm to 5pm @ Richard Doll Lecture Theatre, Richard Doll Building, Old Road Campus, OX3 7LF

Ethox/WEH Seminar - Newborn Screening for Sickle Cell Disease in Tanzania: Understanding ethical, social and resource based implications

Wednesday, 18 September 2019, 11am to 12.30pm @ Seminar room 0, BDI, Old Road Campus, OX3 7LF

Oxford-Peking University Joint Symposium on Precision Medicine

Thursday, 19 September 2019, 10am to 6pm @ Seminar rooms, BDI, Old Road Campus, OX3 7LF

CKB Workshop - Infections, immunity and cancer: aetiology and beyond

Friday, 20 September 2019, 1pm to 5pm @ Seminar rooms, BDI, Old Road Campus, OX3 7LF