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Publications

Authority and the Future of Consent in Population-level Biomedical Research

Sheehan M. et al, (2019), Public Health Ethics

Ethical considerations and call to action for achieving equitable access to human milk for vulnerable infants

PARKER M. and KELLEY M., (2019), Lancet Global Health

Health-emergency disaster risk management and research ethics.

Chan EYY. et al, (2019), Lancet, 393, 112 - 113

Challenges arising when seeking broad consent for health research data sharing: a qualitative study of perspectives in Thailand.

Cheah PY. et al, (2018), BMC Med Ethics, 19

Ethical considerations in global HIV phylogenetic research.

Coltart CEM. et al, (2018), Lancet HIV

Six dimensions of research trial acceptability: how much, what, when, in what circumstances, to whom and why?

Gooding K. et al, (2018), Soc Sci Med, 213, 190 - 198

Big data phenotyping in rare diseases: some ethical issues.

Hallowell N. et al, (2018), Genet Med

Views of rare disease participants in a UK whole-genome sequencing study towards secondary findings: a qualitative study.

Mackley MP. et al, (2018), Eur J Hum Genet, 26, 652 - 659

Health professionals' and researchers' perspectives on prenatal whole genome and exome sequencing: 'We can't shut the door now, the genie's out, we need to refine it'.

Horn R. and Parker M., (2018), PLoS One, 13

How do clinical genetics consent forms address the familial approach to confidentiality and incidental findings? A mixed-methods study.

Dheensa S. et al, (2018), Fam Cancer, 17, 155 - 166

If you come from a well-known organisation, I will trust you: Exploring and understanding the community's attitudes towards healthcare research in Cambodia.

Pol S. et al, (2018), PLoS One, 13

Opening Pandora's box?: ethical issues in prenatal whole genome and exome sequencing.

Horn R. and Parker M., (2018), Prenat Diagn, 38, 20 - 25

Strengthening ethical community engagement in contemporary Malawi.

Nyirenda D. et al, (2018), Wellcome Open Res, 3

'It is an entrustment': Broad consent for genomic research and biobanks in Sub-Saharan Africa.

Tindana P. et al, (2017), Dev World Bioeth

Ethical Translations of Psychiatric Genomics Into Mental Health Practice: Response to Commentaries.

Kong C. et al, (2017), Am J Bioeth, 17, W3 - W5

Beliefs and practices during pregnancy, post-partum and in the first days of an infant's life in rural Cambodia.

Turner C. et al, (2017), BMC Pregnancy Childbirth, 17

Psychiatric Genomics and Mental Health Treatment: Setting the Ethical Agenda.

Kong C. et al, (2017), Am J Bioeth, 17, 3 - 12

Stakeholder views on secondary findings in whole-genome and whole-exome sequencing: a systematic review of quantitative and qualitative studies.

Mackley MP. et al, (2017), Genet Med, 19, 283 - 293

Returning genome sequences to research participants: Policy and practice.

Wright CF. et al, (2017), Wellcome Open Res, 2

Prevalence and architecture of de novo mutations in developmental disorders.

Deciphering Developmental Disorders Study None., (2017), Nature, 542, 433 - 438

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