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Big data phenotyping in rare diseases: some ethical issues.
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Hallowell N. et al, (2018), Genet Med
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Views of rare disease participants in a UK whole-genome sequencing study towards secondary findings: a qualitative study.
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Mackley MP. et al, (2018), Eur J Hum Genet, 26, 652 - 659
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Opening Pandora's box?: ethical issues in prenatal whole genome and exome sequencing.
Journal article
Horn R. and Parker M., (2018), Prenat Diagn, 38, 20 - 25
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If you come from a well-known organisation, I will trust you: Exploring and understanding the community's attitudes towards healthcare research in Cambodia.
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Pol S. et al, (2018), PLoS One, 13
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How do clinical genetics consent forms address the familial approach to confidentiality and incidental findings? A mixed-methods study.
Journal article
Dheensa S. et al, (2018), Fam Cancer, 17, 155 - 166
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'It is an entrustment': Broad consent for genomic research and biobanks in Sub-Saharan Africa.
Journal article
Tindana P. et al, (2017), Dev World Bioeth
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Ethical Translations of Psychiatric Genomics Into Mental Health Practice: Response to Commentaries.
Journal article
Kong C. et al, (2017), Am J Bioeth, 17, W3 - W5
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Psychiatric Genomics and Mental Health Treatment: Setting the Ethical Agenda.
Journal article
Kong C. et al, (2017), Am J Bioeth, 17, 3 - 12
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Stakeholder views on secondary findings in whole-genome and whole-exome sequencing: a systematic review of quantitative and qualitative studies.
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Mackley MP. et al, (2017), Genet Med, 19, 283 - 293
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Returning genome sequences to research participants: Policy and practice.
Journal article
Wright CF. et al, (2017), Wellcome Open Res, 2