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The overall aim of Phase 2 was to develop a brief, meaningful questionnaire capturing issues of importance in long-term conditions. Phase 2.1 specifically involved developing a draft questionnaire, known as the Long Term Conditions Questionnaire (LTCQ).


The conceptual framework developed from the literature reviews was adapted following the consultation with stakeholders and early interviews with people with long-term conditions. These refined dimensions included: Achieving personal goals, Dependency and being a burden, Impact of LTC(s), Loneliness, Physical activity, Roles and responsibilities, Safe environment, Social participation, Stigma, Suitability of home, Burden of treatment and services, Dignity, Support, Coping, Empowerment / sense of control, Information and knowledge and Confidence to manage LTC(s)

The development of items was an iterative process which led to a first draft list of 23 items. These were based on reviews, consultation with professionals and qualitative interviews, and were cross-checked against later qualitative interviews with people with long-term conditions

Living with long-term conditions