Cookies on this website

We use cookies to ensure that we give you the best experience on our website. If you click 'Accept all cookies' we'll assume that you are happy to receive all cookies and you won't see this message again. If you click 'Reject all non-essential cookies' only necessary cookies providing core functionality such as security, network management, and accessibility will be enabled. Click 'Find out more' for information on how to change your cookie settings.

Accept all cookies Reject all non-essential cookies Find out more

Phase 1.2: Stakeholder Consultation

The stakeholders’ consultation investigated the opinions and views of various professional stakeholders towards patient-reported outcome measures (PROM) for long-term conditions. This aimed to inform the development of a PROM that works across long-term conditions and is useful for both health and social care services and interviews with people who have long-term conditions.

Results

Thirty-one stakeholders (including professionals working in health and social care settings and people with a variety of long-term conditions) were interviewed about their experiences of long-term conditions and their opinions about the uses and content of a PROM for long-term conditions.  

Outputs from this study are in preparation, and the results of this study have informed future phases of the research.

Key findings

  • There was broad support for a single PROM that could be used to measure outcomes for patients with any long-term condition in any health or social care setting. 
  • A PROM for long-term conditions should incorporate a mixture of traditional and non-traditional domains, such as functioning, empowerment, and social participation, and be co-developed with patients and professional end-users.
  • A PROM needs to be feasible for practical implementation at the individual clinical level.