Phase 2.1: Questionnaire development
The overall aim of Phase 2 was to develop a brief, meaningful questionnaire capturing issues of importance in long-term conditions. Phase 2.1 specifically involved developing a draft questionnaire - the Long Term Conditions Questionnaire (LTCQ).
The conceptual framework developed from the literature reviews was adapted following the consultation with stakeholders and early interviews with people with long-term conditions. These refined dimensions included: achieving personal goals, dependency and being a burden, impact of LTC(s), loneliness, physical activity, roles and responsibilities, safe environment, social participation, stigma, suitability of home, burden of treatment and services, dignity, support, coping, empowerment/sense of control, information and knowledge and confidence to manage LTC(s)
An iterative process led to a first draft list of 23 items. These were based on reviews, consultation with professionals and qualitative interviews, and were cross-checked against later qualitative interviews with people with long-term conditions.