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There has been a marked shift from clinically assessed to patient assessed outcomes of treatment in neurodegenerative conditions over recent decades. The use of patient-reported outcome measures (PROMs) provides a method with which researchers and clinicians can gain insightful and meaningful data on health status from the patients' perspective. It is imperative that high-quality PROMs are chosen based upon their measurement properties and their suitability for use in the intended clinical or research context. This review aims to give a brief overview of best practice standards for selecting PROMs, current instruments used in exemplar neurodegenerative conditions and their application in clinical trials and routine measurement.

Original publication

DOI

10.2217/nmt.15.25

Type

Journal article

Journal

Neurodegener Dis Manag

Publication Date

08/2015

Volume

5

Pages

305 - 316

Keywords

clinical trial, disease specific, generic, neurodegenerative outcomes, patient-reported outcome measure, questionnaire, reliability, responsiveness, validity, Health Status, Humans, Neurodegenerative Diseases, Patient Outcome Assessment, Quality of Life, Reproducibility of Results, Sensitivity and Specificity, Surveys and Questionnaires