Cookies on this website

We use cookies to ensure that we give you the best experience on our website. If you click 'Accept all cookies' we'll assume that you are happy to receive all cookies and you won't see this message again. If you click 'Reject all non-essential cookies' only necessary cookies providing core functionality such as security, network management, and accessibility will be enabled. Click 'Find out more' for information on how to change your cookie settings.

This seminar will be held by Bluejeans videoconferencing, please email to register and the link will be sent to you in the morning of the seminar.

There is evidence that people are increasingly unwilling to share health data, especially with commercial end users including tech companies. This comes at a time when many of the benefits associated with big data and machine learning in the healthcare context are reliant upon such sharing. How can law and governance establish the conditions for sharing health data, including with commercial end users, while protecting a reasonable expectation of privacy?

In this presentation I consider the requirements for ‘Trustworthy Governance’ and how English law currently protects a reasonable expectation of privacy. I suggest that the legal tools necessary to protect and promote public confidence may already exist, but we currently lack agreement on how to interpret and apply them. If we can establish what it is reasonable to expect of commercial users, at least in relation to the vulnerabilities that they create, then we can move to ensure that they only process health data for purposes patients and public have reason to expect and agree to be appropriate. Until we do this, it will be difficult to achieve the benefits of sharing whilst protecting public trust in a confidential healthcare service.

Forthcoming events

Infectious Disease Seminar Series: Evidence on the effectiveness of non-pharmaceutical interventions

Monday, 12 June 2023, 1pm to 2pm @ BDI/OxPop Building Seminar Room LG 0-1, Old Road Campus, Headington, OX3 7LF

Alcohol phenotypes and how they are related to fMRI derived brain health measurements

Tuesday, 13 June 2023, 11am to 12pm @ Big Data Institute LG 0 Seminar room

Folic acid fortification and disease prevention

Tuesday, 13 June 2023, 1pm to 2pm @ Richard Doll Lecture Theatre, Richard Doll Building, Old Road Campus, OX3 7LF

Infectious Disease Seminar Series: 40 years of combating meningococcal disease: are we nearly there yet?

Monday, 19 June 2023, 1pm to 2pm @ BDI Seminar Room LG 0-1, Old Road Campus, Headington, OX3 7LF

Environmental sensing and it’s association with chronic disease

Tuesday, 11 July 2023, 11am to 12pm @ Big Data Institute LG 0 Seminar room