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This seminar will be held by Bluejeans videoconferencing, please email admin@ethox.ox.ac.uk to register and the link will be sent to you in the morning of the seminar.

There is evidence that people are increasingly unwilling to share health data, especially with commercial end users including tech companies. This comes at a time when many of the benefits associated with big data and machine learning in the healthcare context are reliant upon such sharing. How can law and governance establish the conditions for sharing health data, including with commercial end users, while protecting a reasonable expectation of privacy?

In this presentation I consider the requirements for ‘Trustworthy Governance’ and how English law currently protects a reasonable expectation of privacy. I suggest that the legal tools necessary to protect and promote public confidence may already exist, but we currently lack agreement on how to interpret and apply them. If we can establish what it is reasonable to expect of commercial users, at least in relation to the vulnerabilities that they create, then we can move to ensure that they only process health data for purposes patients and public have reason to expect and agree to be appropriate. Until we do this, it will be difficult to achieve the benefits of sharing whilst protecting public trust in a confidential healthcare service.

Forthcoming events

Will the next pandemic be caused by H5N1 influenza?

Monday, 02 June 2025, 1pm to 2pm @ Richard Doll Lecture Theatre

The world is currently experiencing a panzootic of H5N1 influenza. Wild birds have carried the virus across all continents and an unprecedented number of mammalian species have been infected including humans. What will it take for this virus to go pandemic, and does the introduction of the virus into dairy herds in USA bring that one step closer? Wendy will discuss the current knowledge on host range barriers that protect us from more frequent zoonoses and pandemic from bird flu, and show how we can use this scientific knowledge to risk assess the current situation.

Better treatment for tuberculosis

Monday, 09 June 2025, 1pm to 2pm @ BDI/OxPop Building LG seminar rooms

Resolving the genetic basis of type 2 diabetes in 125 000 Mexicans

Tuesday, 10 June 2025, 1pm to 2pm @ Richard Doll Lecture Theatre

The burden of drug resistant infections, the GRAM project

Monday, 16 June 2025, 1pm to 2pm @ BDI/OxPop Building LG seminar rooms