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Abstract

Introducing newborn screening services for Sickle Cell Disease in Sub-Saharan Africa (SSA) is proved to be the most cost effective approach to reducing morbidity and mortality associated with the disease. In view of that some countries in SSA are embarking on establishing and piloting newborn screening programs for Sickle Cell Disease complemented with comprehensive care services. While these initiatives are commendable, it is imperative to address context-relevant factors that could limit realization of optimal benefits of establishing the screening programs. In this study we used the pilot newborn screening program for Sickle Cell Disease in Tanzania as a platform to understand ethical, socio-cultural and resource based implication of implementing the program in Sub-Saharan Africa. In the first paper, we analyzed the effects of gender norms in the settings before and after newborn screening for Sickle Cell Disease and its influence on the quality of care of the child. In the second paper we highlighted sustainability approaches adapted by the implementers to sustain implementation of the program activities in resource constrained environment.

Forthcoming events

Infectious Disease Seminar Series: What can we learn from fakes?”

Monday, 05 June 2023, 1pm to 2pm @ BDI Seminar Room LG 0-1, Old Road Campus, Headington, OX3 7LF

Infectious Disease Seminar Series: Evidence on the effectiveness of non-pharmaceutical interventions

Monday, 12 June 2023, 1pm to 2pm @ BDI/OxPop Building Seminar Room LG 0-1, Old Road Campus, Headington, OX3 7LF

Alcohol phenotypes and how they are related to fMRI derived brain health measurements

Tuesday, 13 June 2023, 11am to 12pm @ Big Data Institute LG 0 Seminar room

Folic acid fortification and disease prevention

Tuesday, 13 June 2023, 1pm to 2pm @ Richard Doll Lecture Theatre, Richard Doll Building, Old Road Campus, OX3 7LF