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Abstract

The objective of my study is to identify ethical issues in Health and Demographic Surveillance Systems (HDSS) in sub-Saharan Africa (SSA) and to make recommendations on how these ethical issues should be responded to. A HDSS longitudinally monitor births, deaths and migrations in a geographically defined population. There are 53 HDSS sites located in low and middle income countries across Africa, Asia and Oceania. The majority of these HDSS sites are in sub-Saharan Africa. The Verbal Autopsy, which involves conducting interviews with the bereaved to find out the probable cause of death, is a key component of a HDSSHDSS sites are seen as interim measures for providing population-level data in countries without well-functioning civil registration and vital statistics systems.

Methodologically, HDSS are indistinctly positioned between research, health care and public health practice. Secondly, they involve long-term follow up of entire populations in settings of multidimensional poverty. In addition, HDSS have received little attention in the ethics literature and guidelines. Therefore, there is a lack of clarity on what the ethical issues in HDSS are and how they should be responded to. My study will contribute to filling this gap. I am using a case study research design. Participants include HDSS research and community stakeholders. Data collection methods include individual in-depth interviews, observation, focus group discussions and document review.

Forthcoming events

NDPH Special Seminar - Could cigarette smoking really protect against a few types of cancer?

Monday, 21 October 2019, 1pm to 2pm @ CEU meeting room, 3rd Floor, Richard Doll Building, Old Road Campus, OX3 7LF

Richard Doll Seminar - Chronic kidney disease of unknown cause: the epidemic you’ve never heard of

Tuesday, 22 October 2019, 1pm to 2pm @ Seminar rooms, BDI, Old Road Campus, OX3 7LF

UVBO Seminar - Nutrient timing and human health

Thursday, 24 October 2019, 1pm to 2pm @ School of Anthropology, 61 Banbury Road, OX2 6PE

NPEU Seminar - title TBC

Monday, 28 October 2019, 2pm to 3pm @ Seminar room 0, BDI, Old Road Campus, OX3 7LF

Richard Doll Seminar - Prostate cancer screening and treatment: what is the trial evidence and linked epidemiology?

Tuesday, 29 October 2019, 1pm to 2pm @ Seminar rooms, BDI, Old Road Campus, OX3 7LF

Health Services Research Unit Methods Group – Clinical Outcome Assessments: Content validity and meaningful change

Tuesday, 05 November 2019, 10.30am to 11.30am @ L1 Meeting room, Richard Doll Building, Old Road Campus, OX3 7LF