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Abstract

The objective of my study is to identify ethical issues in Health and Demographic Surveillance Systems (HDSS) in sub-Saharan Africa (SSA) and to make recommendations on how these ethical issues should be responded to. A HDSS longitudinally monitor births, deaths and migrations in a geographically defined population. There are 53 HDSS sites located in low and middle income countries across Africa, Asia and Oceania. The majority of these HDSS sites are in sub-Saharan Africa. The Verbal Autopsy, which involves conducting interviews with the bereaved to find out the probable cause of death, is a key component of a HDSSHDSS sites are seen as interim measures for providing population-level data in countries without well-functioning civil registration and vital statistics systems.

Methodologically, HDSS are indistinctly positioned between research, health care and public health practice. Secondly, they involve long-term follow up of entire populations in settings of multidimensional poverty. In addition, HDSS have received little attention in the ethics literature and guidelines. Therefore, there is a lack of clarity on what the ethical issues in HDSS are and how they should be responded to. My study will contribute to filling this gap. I am using a case study research design. Participants include HDSS research and community stakeholders. Data collection methods include individual in-depth interviews, observation, focus group discussions and document review.

Forthcoming events

Richard Doll Seminar: Design and analysis of prevalence surveys in low-resource settings

Tuesday, 25 February 2020, 1pm to 2pm @ Richard Doll Lecture Theatre, Richard Doll Building, Old Road Campus, OX3 7LF

WEH/Ethox Seminar

Wednesday, 26 February 2020, 11am to 12.30pm @ Seminar room 0, Big Data Institute, Old Road Campus, OX3 7LF

HERC Seminar: Learning healthcare systems for cost-effective precision oncology.

Thursday, 27 February 2020, 12pm to 1pm @ Seminar room 0, Big Data Institute, Old Road Campus, OX3 7LF

The Global Response to the Novel Coronavirus (SARS-CoV-2) Outbreak

Thursday, 27 February 2020, 2.30pm to 4pm @ Seminar rooms, Big Data Institute

Richard Doll Seminar: The Risk of Everything – using linked electronic health records to develop and validate risk prediction tools for use in clinical care

Tuesday, 03 March 2020, 1pm to 2pm @ Richard Doll Lecture Theatre, Richard Doll Building, Old Road Campus, OX3 7LF

WEH/Ethox Seminar: Building research capacity through North-South Partnerships: some ethical reflections and a social justice agenda

Wednesday, 04 March 2020, 11am to 12.30pm @ Seminar room 0, Big Data Institute, Old Road Campus, OX3 7LF