Ethox Seminar: To report or not to report? That's not the only question!
Dr Danya Vears, Center for Biomedical Ethics and Law, KU Leuven
Wednesday, 13 June 2018, 11am to 12.30pm
BDI Seminar Room 0, Big Data Institute, Oxford, OX3 7LF
Next generation sequencing technologies (NGS) such as whole genome, whole exome, and large panels of genes, are rapidly changing the paradigm of medicine. Widespread use of NGS carries with it many ethical and practical challenges, some of which persist despite considerable debate. Whether laboratories and clinics should report variants of uncertain significance (VUS) to clinicians and/or patients, reinterpret VUS in response to the growing knowledge in the field, reissue reports to clinicians based on any revised classifications, and recontact patients, are all key unsolved issues in the clinical use of NGS. In addition, the question of whether, and to what extent, unsolicited findings (also known as incidental findings) should be returned to patients following NGS remains unanswered. In this presentation, Danya will discuss these issues, drawing on data from a systematic analysis 58 consent forms being used in the diagnostic setting to investigate their policies.
If you would like to attend, please e-mail Jane Beinart at jane.beinart@ethox.ox.ac.uk.
VIEW Previous Richard Doll seminars IN Public health and epidemiology
Professor Sir Richard Doll
Forthcoming events
Infectious Disease Data Observatory (IDDO): creating a trustworthy environment for hosting, harmonising and analysing individual patient clinical data for infectious disease
Monday, 02 October 2023, 12.30pm to 2pm @ BDI/OxPop Building seminar rooms
The epidemiology of periportal fibrosis in the context of intestinal schistosomiasis
Monday, 09 October 2023, 1pm to 2pm @ BDI/OxPop Building seminar rooms
Defeating Meningitis by 2023 Global Roadmap
Monday, 16 October 2023, 1pm to 2pm @ BDI/OxPop Building seminar room 1
Population structure, admixture and ancestry variation across China Kadoorie Biobank and Utility of imaging-based body fat composition in predicting traits and cardio-metabolic diseases
Wednesday, 18 October 2023, 12pm to 1pm @ BDI/OxPop Building LG seminar room 0
OxPop Festival of Global Health - The Cancer Conflict
Thursday, 19 October 2023, 5pm to 8pm @ Richard Doll Lecture Theatre, Richard Doll Building, Roosevelt Drive, Oxford, OX3 7LF
Cancer Treatments: trust and information
Chronic infections and risk of NCDs in Chinese adults
Monday, 30 October 2023, 1pm to 2pm @ BBDI/OxPop Building seminar rooms