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The PDQ-39 Revisited 

In the nineties researchers in the Health Services Research Unit developed the 39-item Parkinson’s Disease Questionnaire (PDQ-39) in order to assess the impact of Parkinson’s disease on health-related quality of life. A recent review of the PDQ-39 has suggested the items and wording are as relevant today as they were when the measure was developed. However, we are taking this opportunity to explore the development of optional modules that could be adopted in trials aimed at specific aspects of the disease.

A recent series of 20 interviews with people with Parkinson’s (PwP) generated 28 new questions related to issues concerning sleep, exercise and medication. These new questions are in the process of being tested in a further group of PwP to ensure that they are acceptable. Once this is done the new questions will be validated in an online survey. We anticipate the survey will start in the spring of 2019.

 

The Parkinson's Disease Carer Questionnaire (PDQ-Carer)

The PDQ-Carer is a 29-item measure of health related quality of life for use with carers of people with Parkinson’s disease. It was originally designed and validated for pen and paper completion, but has now been transferred to electronic format for use on personal computers, laptops, tablet computers and smart phones. Through a small number of interviews with carers for PwP we have confirmed that the electronic PDQ-Carer can be used effectively on these devices.

The next stage of the project is to conduct an online survey in the spring of 2019 with carers. This will allow us to identify whether the PDQ-Carer is able to pick up changes in how people’s caring role might be affecting them.

Results from these studies will be made available on this website in due course.

For further information and details on how to obtain a licence to use the PDQ-39 please visit the PDQ-39 page on the Oxford University Innovation website.

For further information and details on how to obtain a licence to use the PDQ-Carer please visit the PDQ-Carer page on the Oxford University Innovation website.