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2017/2018

  • Dr Julian Mausbach, University of Zurich, Switzerland - Report

2016/2017

2015/2016

  • Dr Ignacio Mastroleo, CONICET, FLASCO, Argentina
  • Mahsa Shabani, Centre for Biomedical Ethics and Law, KU Leuven, Belgium  
  • Carlos Luis Parra Calderón, Hospital Universitario Virgen Macarena y Hospital Universitario Virgen del Rocío , Seville, Spain
  • Isabelle Budin Ljøsne , Centre for Medical Ethics, University of Oslo, Norway
  • Deborah Mascalzoni,  CRB Uppsala, Iceland

2014/2015

  • Dr Teresa Finlay, University of Cardiff, Wales
  • Toshihiro Takeda, University of Osaka, Japan

Paula Boddington

Research Associate, HeLEX
Ethical issues arising from identifying novel susceptibility genes for early onset coronary artery disease

Anne Davies

Research Associate, HeLEX
Constitutional and Administrative Law; European Community Law; Human Rights Law; Medical Law and Ethics; Labour/Employment Law; Regulation; Socio-Legal Studies

Donna Dickenson

Research Associate, HeLEX
Research Interests: Commodification of the human body, genetic patenting, reproductive ethics and law, personalised genetic testing and biobanks.

Charles Foster

Research Associate, HeLEX
Consent, clinical confidentiality, withdrawal of life-sustaining treatment, assisted suicide, reproductive technology, clinical negligence, disciplinary and regulatory law related to healthcare

Sue Gibbons

Research Associate, HeLEX
Defining biobanks, categorising biobanks effectively for governance purposes, consent (especially under the Human Tissue Act 2004), harmonising terminology, providing feedback to participants, rationalising legal and ethical frameworks, and re-appraising the subsisting data–tissue regulatory dichotomy.

Imogen Goold

Research Associate, HeLEX

Naomi Hawkins

Research Associate, HeLEX
 

Jonathan Herring

Research Associate, HeLEX
Family law, medical law, criminal law. Current projects includes work on birth; carers; sexual offences; and issues surrounding dementia.

Nadja Kanellopoulou

Research Associate, HeLEX
 

Susan E. Wallace

Dr Susan Wallace is Lecturer of Population and Public Health Sciences in the Department of Health Sciences at the University of Leicester.

Mark Taylor 

Mark Taylor was a senior lecturer in the School of Law at the University of Sheffield, author of Genetic Data and the Law (CUP, 2012) and a mid-career Fellow of the British Academy (2012-2013).  Mark has been in post as Deputy Director in our Melbourne HeLEX office at the Melbourne Law School, Australia since February 2018.

Eric Meyer

Dr Meyer is a Senior Research Fellow at the Oxford Internet Institute, University of Oxford. His research in the field of social informatics focuses on the changing nature of knowledge creation across the sciences, social sciences, arts, and humanities as technology is embedded in everyday practices.

Jennifer Harris

Senior Researcher in the Division of Epidemiology at the Norwegian Institute of Public Health in Oslo, Norway.

Sigrid Sterckx

Intellectual property; genomics; biobanking; organ transplantation; research ethics
 

Andelka Phillips

Andelka’s doctoral research examined the use of online wrap contracts (clickwrap and browsewrap) and the protection of consumers’ rights in their genetic information in the context of direct-to-consumer (DTC) genetic testing.

Firdaus Aziz

Mohammad Firdaus Bin Abdul Aziz is a Law Fellow at the University of Malaya in Malaysia, and an early researcher in the area of law and ethics of human stem cell research. He is also interested to explore other areas of emerging technologies.

J Patrick Woolley

J. Patrick Woolley applies his training in philosophy to the analysis of normative issues that arise in our increasingly pluralistic societies, where cultural and demographic differences need to be respected in the pursuit of a societal good. In postdoctoral research undertaken at HeLEX, he combined this with his research experience in genomics to examine the changing role of consent in biomedical research and the new “social contract” that is emerging as a result of widespread sharing of genomic data. He is a member of Global Alliance for Genomics and Health (GA4GH) task teams which consider questions in ethics review equivalency and develop ELSI related metadata procedures and technologies.

 

The Centre for Health, Law and Emerging Technologies was established in Oxford by Professor Jane Kaye in 2009. Our socio-legal research focuses on how the development and application of innovative technologies in health – such as genomics, stem cell research and CRISPR-mediated genetic modification – can be accommodated within existing legal and regulatory frameworks, and how far such frameworks may need to evolve. By being integrated in scientific projects from conception to dissemination, we can keep pace with current developments in cutting-edge science and develop practical solutions based on sound empirical and legal scholarship.
This year sees the establishment of HeLEX@Melbourne, a new research team focusing on health, law and emerging technologies at Melbourne Law School. This team focuses on issues such as consent, privacy and sharing of digital health data and human tissue samples, especially in relation to the new Melbourne Biomedical Precinct. We now have 15 members of staff and several PhD students across our Melbourne and Oxford offices. The team has an outstanding track record in high-impact research, international collaboration, involvement in policy making, peer-reviewed publications and grants.

Approach

Our research is interdisciplinary, using tools and methods of investigation and analysis from law and the social sciences. Working alongside scientists enables us to take our academic scholarship and apply it in a testing environment leading to the development of ethical and lawful best practice. By combining the results of these investigations, we can generate insights for more effective policy making. Recommendations developed from our research are legally compliant, based on sound ethical principles and grounded in an understanding of current practice.

Current projects

Current work includes projects on biomodifying technologies, governance of health data in cyberspace, turning the waiting room into a knowledge centre and dynamic consent.

 

Staff of HeLEX@Melbourne

 

Prof Jane Kaye

DPhil (2004), LLB (Hons) (1993), BA (1985)
Prof Jane Kaye is the Director of the Centre for Law, Health and Emerging Technologies (HeLEX) at the University of Oxford. She is also a Professor at Melbourne Law School, Australia, where in 2017 she is establishing HeLEX@Melbourne. She was admitted to practice as a solicitor/barrister in 1997. Her research focuses on the relationships between law, governance and best practice in the context of data protection and privacy law, Dynamic Consent, biobanks, genomics, data-sharing frameworks, global governance and translational research. Prof Kaye has obtained approximately £6.5m in grant funding from Australian, European and UK funding bodies. Since 2000, she has published 2 books and 105 articles. She has supervised 7 DPhil students and 3 Masters students and over 25 postdocs.

Dr Carolyn Johnston

PhD (2011), MA (1998), LLM (1988), LLB (1982)
Dr Carolyn Johnston will join HeLEX@Melbourne in January as a Senior Research Fellow. She is currently employed as a lecturer in Health Ethics, Law and Professionalism at Deakin University in Melbourne, and was previously Adviser Medical Law & Ethics, King’s College London, Guy’s King’s and St Thomas’ School of Medical Education and Senior Lecturer Kingston University, Law School.

Dr Mark Taylor

PhD (2003), MA (1999), LLB (Hons) (1994)
Dr Mark Taylor is currently a Senior Lecturer at the University of Sheffield but will be moving to Melbourne Law School as Deputy Director of HeLEX@Melbourne in January 2018. His research interests include the regulation of personal information with particular emphasis upon health information and the common law duty of confidence and the Data Protection Act 1998.

Dr Jessica Bell

PhD (2016), MA (2010); LLB Hons (2009)
Dr Jessica Bell is a Research Fellow at HeLEX@Melbourne working to build collaborations between the Melbourne Law School and the Melbourne Biomedical Precinct. Jessica provides research and policy advice on topics such as privacy and data protection; the regulation and governance of emerging technologies and genomics; and the use of digital technologies for translational research.

Dr Harriet Teare

DPhil (2009), MChem (2005)
Dr Harriet Teare is Deputy Director of HeLEX@Oxford and is now in Melbourne helping to establish the Melbourne office. Her research explores how research findings are translated to patient benefit; the influence this has on the wider healthcare system, and the role of patients in research and clinical care.

Dr Megan Prictor

LLB Hons (2014), PhD (2000), MMus (1997), BMus Hons (1994)
Dr Megan Prictor joined HeLEX@Melbourne in July as a Research Fellow, from the Office of the Chief Parliamentary Counsel in the Victorian government. She was admitted to practice in the Victorian Supreme Court in 2017. She was previously a Managing Editor with the Cochrane Collaboration, responsible for high-quality systematic reviews of research in patient and public engagement, informed consent, doctor-patient communication and shared decision-making.