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REPORT: Short Term Scientific Mission 01/2017 - 02/2017

  • Heide Beate Bentzen, Centre of Medical Ethics, Oslo, Norway

REPORT: Short Term Scientific Mission 11/2016 -12/2016

  • Professor Cameron Stewart, University of Sydney, Australia
  • Professor Kazuto Kato, Osaka University, Japan
  • Professor Beverly Yamamoto, Osaka University, Japan
  • Nao Hamakama, Osaka University, Japan
  • Rumiko Nakano, Osaka University, Japan


  • Dr Ignacio Mastroleo, CONICET, FLASCO, Argentina
  • Mahsa Shabani, Centre for Biomedical Ethics and Law, KU Leuven, Belgium  
  • Carlos Luis Parra Calderón, Hospital Universitario Virgen Macarena y Hospital Universitario Virgen del Rocío , Seville, Spain
  • Isabelle Budin Ljøsne , Centre for Medical Ethics, University of Oslo, Norway
  • Deborah Mascalzoni,  CRB Uppsala, Iceland


  • Dr Teresa Finlay, University of Cardiff, Wales
  • Toshihiro Takeda, University of Osaka, Japan

Paula Boddington

Research Associate, HeLEX
Ethical issues arising from identifying novel susceptibility genes for early onset coronary artery disease

Anne Davies

Research Associate, HeLEX
Constitutional and Administrative Law; European Community Law; Human Rights Law; Medical Law and Ethics; Labour/Employment Law; Regulation; Socio-Legal Studies

Donna Dickenson

Research Associate, HeLEX
Research Interests: Commodification of the human body, genetic patenting, reproductive ethics and law, personalised genetic testing and biobanks.

Charles Foster

Research Associate, HeLEX
Consent, clinical confidentiality, withdrawal of life-sustaining treatment, assisted suicide, reproductive technology, clinical negligence, disciplinary and regulatory law related to healthcare

Sue Gibbons

Research Associate, HeLEX
Defining biobanks, categorising biobanks effectively for governance purposes, consent (especially under the Human Tissue Act 2004), harmonising terminology, providing feedback to participants, rationalising legal and ethical frameworks, and re-appraising the subsisting data–tissue regulatory dichotomy.

Imogen Goold

Research Associate, HeLEX

Naomi Hawkins

Research Associate, HeLEX

Jonathan Herring

Research Associate, HeLEX
Family law, medical law, criminal law. Current projects includes work on birth; carers; sexual offences; and issues surrounding dementia.

Nadja Kanellopoulou

Research Associate, HeLEX

Susan E. Wallace

Dr Susan Wallace is Lecturer of Population and Public Health Sciences in the Department of Health Sciences at the University of Leicester.

Mark Taylor 

Mark Taylor is a senior lecturer in the School of Law at the University of Sheffield, author of Genetic Data and the Law (CUP, 2012) and a mid-career Fellow of the British Academy (2012-2013)

Eric Meyer

Dr Meyer is a Senior Research Fellow at the Oxford Internet Institute, University of Oxford. His research in the field of social informatics focuses on the changing nature of knowledge creation across the sciences, social sciences, arts, and humanities as technology is embedded in everyday practices.

Jennifer Harris

Senior Researcher in the Division of Epidemiology at the Norwegian Institute of Public Health in Oslo, Norway.

Sigrid Sterckx

Intellectual property; genomics; biobanking; organ transplantation; research ethics

Andelka Phillips

Andelka’s doctoral research examined the use of online wrap contracts (clickwrap and browsewrap) and the protection of consumers’ rights in their genetic information in the context of direct-to-consumer (DTC) genetic testing.

Firdaus Aziz

Mohammad Firdaus Bin Abdul Aziz is a Law Fellow at the University of Malaya in Malaysia, and an early researcher in the area of law and ethics of human stem cell research. He is also interested to explore other areas of emerging technologies.


J. Patrick Woolley applies his training in philosophy to the analysis of normative issues that arise in our increasingly pluralistic societies, where cultural and demographic differences need to be respected in the pursuit of a societal good. In postdoctoral research undertaken at HeLEX, he combined this with his research experience in genomics to examine the changing role of consent in biomedical research and the new “social contract” that is emerging as a result of widespread sharing of genomic data. He is a member of Global Alliance for Genomics and Health (GA4GH) task teams which consider questions in ethics review equivalency and develop ELSI related metadata procedures and technologies.