Publications

Women's wellbeing as an empty declaration? A qualitative exploration of challenges in accessing termination of pregnancy due to fetal anomaly in Germany.

Nov-Klaiman T. et al, (2025), BMC Med Ethics, 26

Negotiating severity behind the scenes: prenatal testing in Germany.

Nov-Klaiman T. et al, (2025), Eur J Hum Genet, 33, 220 - 225

Ethical considerations in prenatal genomic testing.

Horn R. et al, (2024), Best Pract Res Clin Obstet Gynaecol, 97

Women's preferences for NIPT as a first-line test in England and France: Challenges for genetic counseling practices.

Perrot A. et al, (2024), J Genet Couns, 33, 1204 - 1214

Ethical and social implications of public-private partnerships in the context of genomic/big health data collection.

Horn R. et al, (2024), Eur J Hum Genet, 32, 736 - 741

"Uninformed consent" in clinical trials with cancer patients: A qualitative analysis of patients' and support persons' communication experiences and needs.

Christine B. et al, (2024), Patient Educ Couns, 122

Supporting patient decision-making in non-invasive prenatal testing: a comparative study of professional values and practices in England and France.

Bowman-Smart H. et al, (2024), BMC Med Ethics, 25

Solidarity during the COVID-19 pandemic: evidence from a nine-country interview study in Europe.

Kieslich K. et al, (2023), Med Humanit, 49, 511 - 520

Preserving women's reproductive autonomy while promoting the rights of people with disabilities?: the case of Heidi Crowter and Maire Lea-Wilson in the light of NIPT debates in England, France and Germany.

Perrot A. and Horn R., (2023), J Med Ethics, 49, 471 - 473

Old and new challenges regarding comparable and viable data sharing in population-scale genomic research.

Raz A. et al, (2023), Eur J Hum Genet, 31, 617 - 618

Non-invasive prenatal testing in Germany: a unique ethical and policy landscape.

Bowman-Smart H. et al, (2023), Eur J Hum Genet, 31, 562 - 567

Not putting the cart before the horse: the complex social and ethical terrain of prenatal exome sequencing.

Boardman F. and Horn R., (2023), Eur J Hum Genet, 31, 134 - 135

Managing expectations, rights, and duties in large-scale genomics initiatives: a European comparison.

Horn R. et al, (2023), Eur J Hum Genet, 31, 142 - 147

Ethical Issues in Prenatal Genetic Diagnosis: new guidance of the British Society for Genetic Medicine

Horn R. et al, (2023), EUROPEAN JOURNAL OF HUMAN GENETICS, 31, 682 - 683

Democratic research: Setting up a research commons for a qualitative, comparative, longitudinal interview study during the COVID-19 pandemic.

Zimmermann BM. et al, (2022), SSM Qual Res Health, 2

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