Publications

Justification of Deferral of Consent in the ACT-GLOBAL Adaptive Platform Trial in Stroke.

Shamy M. et al, (2026), J Clin Epidemiol

Germline genomic testing to assess the suitability of stem cell donors in the treatment of haematological malignancy: clinical ethics commentary.

Carley H. et al, (2025), J Med Ethics

Views and attitudes about the offer of NIPT: a qualitative study of UK healthcare professionals.

Young PD. and Sahan KM., (2025), BMC Med Ethics, 26

The role of the enrolling clinician in emergency research conducted under an exception from informed consent.

Sahan K. et al, (2025), Theor Med Bioeth, 46, 231 - 246

Determining a role for Patient and Public Involvement and Engagement (PPIE) in genomic data governance for cancer care.

Sahan K. et al, (2025), Eur J Hum Genet

Towards an understanding of the ethics of electronic consent in clinical trials.

Sahan K. et al, (2024), Trials, 25

Ethical preparedness in genomic medicine: how NHS clinical scientists navigate ethical issues.

Sahan K. et al, (2024), J Med Ethics, 50, 517 - 522

Response to commentaries: ethical preparedness in genomic medicine-how NHS clinical scientists navigate ethical issues.

Sahan K. and Lyle K., (2024), J Med Ethics, 50, 532 - 533

'A good decision is the one that feels right for me': Codesign with patients to inform theoretical underpinning of a decision aid website.

Kohut K. et al, (2024), Health Expect, 27

Reasons for Not Participating in PCTs: The Comparative Case of Emergency Research under an Exception from Informed Consent (EFIC).

Sahan K. et al, (2023), Am J Bioeth, 23, 70 - 72

Germline mismatch repair (MMR) gene analyses from English NHS regional molecular genomics laboratories 1996-2020: development of a national resource of patient-level genomics laboratory records.

Loong L. et al, (2023), J Med Genet, 60, 669 - 678

Quantifying prediction of pathogenicity for within-codon concordance (PM5) using 7541 functional classifications of BRCA1 and MSH2 missense variants.

Loong L. et al, (2022), Genet Med, 24, 552 - 563

Misuse of "Usual Care" in Emergency Care Research: A Call for Adapting Rules Governing Exception from Informed Consent (EFIC) Studies.

Cowan E. et al, (2020), Am J Bioeth, 20, 59 - 61

Community engagement, social context and coverage of mass anti-malarial administration: Comparative findings from multi-site research in the Greater Mekong sub-Region.

Pell CL. et al, (2019), PLoS One, 14

In defence of governance: ethics review and social research.

Sheehan M. et al, (2018), J Med Ethics, 44, 710 - 716

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