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OBJECTIVES: To explore the views of a range of stakeholders regarding whether patient-reported outcome measures (PROMs) can be developed to measure key attributes of long-term conditions (LTCs) care in England, and the potential value of a single generic measure. DESIGN: Qualitative semistructured interview study, analysed using a framework approach. PARTICIPANTS AND SETTING: Interviews with 31 stakeholders from primary care, secondary care, social care, policy and patient-focused voluntary organisations in England. RESULTS: There was broad support for a single PROM that could be used to measure outcomes for patients with any LTCs in any health or social care setting. Interviewees identified three desired uses for a PROM: to improve the quality of individual care; to increase people's engagement in their own care; and to monitor the performance of services. Interviewees felt that a PROM for LTCs should incorporate a mixture of traditional and non-traditional domains, such as functioning, empowerment and social participation, and be codesigned with patients and professional end-users. Stakeholders emphasised the need for a PROM to be feasible for practical implementation at the individual clinical level as a first priority. A number of concerns and potential problems were identified in relation to the application and interpretation of an LTC PROM. CONCLUSIONS: This study has demonstrated support for a single self-report outcome measure that reflects the priorities of people with LTCs, if such a measure can be shown to be meaningful and useful at the individual level. People with LTCs and professional end-users in health and social care should be involved in the development and evaluation of such a measure.

Original publication

DOI

10.1136/bmjopen-2014-006986

Type

Journal article

Journal

BMJ Open

Publication Date

19/05/2015

Volume

5

Keywords

PRIMARY CARE, QUALITATIVE RESEARCH, Chronic Disease, Continuity of Patient Care, England, Evidence-Based Medicine, Feasibility Studies, Humans, Patient Care Planning, Policy Making, Primary Health Care, Professional-Patient Relations, Qualitative Research, Quality Improvement, Quality of Health Care, Referral and Consultation, Secondary Care, Self Report, Social Support, Surveys and Questionnaires