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This paper discusses the nature of genomic information, and the moral arguments in support of an individual's right to access it. It analyses the legal avenues an individual might take to access their sequence information. The authors describe the policy implications in this area and conclude that, for now, the law appears to strike an appropriate balance, but new policy will need to be developed to address this issue.

Original publication

DOI

10.1093/medlaw/fwt027

Type

Journal article

Journal

Med Law Rev

Publication Date

2014

Volume

22

Pages

64 - 86

Keywords

DNA sequencing, bioethics, genetic research, genome, research ethics, research findings, Databases, Genetic, Genetic Privacy, Genetic Research, Genetic Testing, Genome, Human, Humans, Patient Access to Records, United Kingdom