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Abstract

At the Uganda Cancer Institute, lines often blur between past and present, sickness and health, life and death. Founded in 1967 as a small chemotherapy clinical trials facility in Kampala, today the Institute’s 100+ beds serve a population catchment of over 40 million living in the Great Lakes region of Africa. The Institute houses the only continuous collection of patient records documenting cancer treatment and care on the African continent. As this Institute gets torn down and built back up, so too do longstanding practices of cancer research and care. And with all of these changes at the Institute, there are major questions about what to preserve, what to discard, and what to celebrate. And in particular, what should be “done” with the institutional records and patient records at this site? This talk considers the temporal, methodological, and ethical challenges of preserving patient records at the Uganda Cancer Institute.

Forthcoming events

WEH/Ethox Seminar: Translational ethics: working with clinicians to improve ethical decision-making

Wednesday, 08 July 2020, 2.30pm to 4pm

This seminar will be held by Bluejeans videoconferencing, please email admin@ethox.ox.ac.uk for the meeting link.

Richard Doll Seminar -COVID-19: where to next?

Tuesday, 14 July 2020, 1pm to 2pm

WEH/Ethox Seminar: Consent and confidentiality in family medicine: reflections on the “ABC” case

Wednesday, 15 July 2020, 2.30pm to 4pm

This seminar will be held by Bluejeans videoconferencing, please email admin@ethox.ox.ac.uk to register. A link to the meeting will then be sent to you on the day of the seminar.