Nina Hallowell

• The Psychosocial Impact of Undergoing Prophylactic Total Gastrectomy (PTG) to Manage the Risk of Hereditary Diffuse Gastric Cancer (HDGC).

  Hallowell N. et al, (2017), J Genet Couns, 26, 752 - 762

• Written versus verbal consent: a qualitative study of stakeholder views of consent procedures used at the time of recruitment into a peripartum trial conducted in an emergency setting.

  Lawton J. et al, (2017), BMC Med Ethics, 18

• High-risk individuals' perceptions of reproductive genetic testing for CDH1 mutations.

  Hallowell N. et al, (2017), Fam Cancer

• Staff experiences of closing out a clinical trial involving withdrawal of treatment: qualitative study.

  Lawton J. et al, (2017), Trials, 18

• A qualitative study of patients' perceptions of the value of molecular diagnosis for familial hypercholesterolemia (FH).

  Hallowell N. et al, (2017), J Community Genet, 8, 45 - 52

• Therapeutic appropriation: a new concept in the ethics of clinical research.

  McDougall R. et al, (2016), J Med Ethics, 42, 805 - 808

• An investigation of the factors effecting high-risk individuals' decision-making about prophylactic total gastrectomy and surveillance for hereditary diffuse gastric cancer (HDGC).

  Hallowell N. et al, (2016), Fam Cancer, 15, 665 - 676

• If you build it, they will come: unintended future uses of organised health data collections.

  O'Doherty KC. et al, (2016), BMC Med Ethics, 17

• The role of therapeutic optimism in recruitment to a clinical trial in a peripartum setting: balancing hope and uncertainty.

  Hallowell N. et al, (2016), Trials, 17

• Recruiting and consenting into a peripartum trial in an emergency setting: a qualitative study of the experiences and views of women and healthcare professionals.

  Lawton J. et al, (2016), Trials, 17

• Timing and context: important considerations in the return of genetic results to research participants.

  McBride KA. et al, (2016), J Community Genet, 7, 11 - 20

• Treating childhood intermittent distance exotropia: a qualitative study of decision making.

  Lecouturier J. et al, (2015), BMC Ophthalmol, 15

• Revealing the results of whole-genome sequencing and whole-exome sequencing in research and clinical investigations: some ethical issues.

  Hallowell N. et al, (2015), J Med Ethics, 41, 317 - 321

• Connecting patients, researchers and clinical genetics services: the experiences of participants in the Australian Ovarian Cancer Study (AOCS).

  Crook A. et al, (2015), Eur J Hum Genet, 23, 152 - 158

• Rehabilitating the sick role: The experiences of high-risk women who undergo risk reducing breast surgery

  Hallowell N. et al, (2015), Health Sociology Review, 24, 186 - 198

• Middleword II: Pushing the boundaries

  Hallowell N., (2014), Breast Cancer Gene Research and Medical Practices: Transnational Perspectives in the Time of BRCA, 127 - 131

• Implementing risk-stratified screening for common cancers: a review of potential ethical, legal and social issues.

  Hall AE. et al, (2014), J Public Health (Oxf), 36, 285 - 291

• What ethical and legal principles should guide the genotyping of children as part of a personalised screening programme for common cancer?

  Hall AE. et al, (2014), J Med Ethics, 40, 163 - 167

• Genetic medicine and incidental findings: it is more complicated than deciding whether to disclose or not.

  Crawford G. et al, (2013), Genet Med, 15, 896 - 899

• The responses of research participants and their next of kin to receiving feedback of genetic test results following participation in the Australian Ovarian Cancer Study.

  Hallowell N. et al, (2013), Genet Med, 15, 458 - 465

• Incorporating genomics into breast and prostate cancer screening: assessing the implications.

  Chowdhury S. et al, (2013), Genet Med, 15, 423 - 432

• Stratified cancer screening: The practicalities of implementation

  Dent T. et al, (2013), Public Health Genomics, 16, 94 - 99

• Inter-embodiment and the experience of genetic testing for familial hypercholesterolaemia.

  Jenkins N. et al, (2013), Sociol Health Illn, 35, 529 - 543

• How do index patients participating in genetic screening programmes for familial hypercholesterolemia (FH) interpret their DNA results? A UK-based qualitative interview study.

  Jenkins N. et al, (2013), Patient Educ Couns, 90, 372 - 377

• Stratified cancer screening: the practicalities of implementation.

  Dent T. et al, (2013), Public Health Genomics, 16, 94 - 99

• Motivations for undertaking DNA sequencing-based non-invasive prenatal testing for fetal aneuploidy: a qualitative study with early adopter patients in Hong Kong.

  Yi H. et al, (2013), PLoS One, 8

• Looking different, feeling different: women's reactions to risk-reducing breast and ovarian surgery.

  Hallowell N. et al, (2012), Fam Cancer, 11, 215 - 224

• Understanding the outcomes of multi-centre clinical trials: a qualitative study of health professional experiences and views.

  Lawton J. et al, (2012), Soc Sci Med, 74, 574 - 581

• Understanding the outcomes of multi-centre clinical trials: A qualitative study of health professional experiences and views

  Lawton J. et al, (2012), Social Science and Medicine, 74, 574 - 581

• Patients' experiences and views of cascade screening for familial hypercholesterolemia (FH): a qualitative study.

  Hallowell N. et al, (2011), J Community Genet, 2, 249 - 257

• Challenges of maintaining research protocol fidelity in a clinical care setting: a qualitative study of the experiences and views of patients and staff participating in a randomized controlled trial.

  Lawton J. et al, (2011), Trials, 12

• Participants' experiences of intensifying insulin therapy during the Treating to Target in Type 2 Diabetes (4-T) trial: qualitative interview study.

  Jenkins N. et al, (2011), Diabet Med, 28, 543 - 548

• A family perspective of the value of a diagnosis for intellectual disability: Experiences from a genetic research study

  Statham H. et al, (2011), British Journal of Learning Disabilities, 39, 46 - 56

• Initiating insulin as part of the Treating To Target in Type 2 Diabetes (4-T) trial: an interview study of patients' and health professionals' experiences.

  Jenkins N. et al, (2010), Diabetes Care, 33, 2178 - 2180

• Treatment-focused DNA testing for newly diagnosed breast cancer patients: some implications for clinical practice.

  Lobb EA. et al, (2010), Clin Genet, 77, 350 - 354

• Lay and professional understandings of research and clinical activities in cancer genetics and their implications for informed consent

  Hallowell N. et al, (2010), AJOB Primary Research, 1, 25 - 34

• An investigation of patients' motivations for their participation in genetics-related research.

  Hallowell N. et al, (2010), J Med Ethics, 36, 37 - 45

• A comparison of male attendees and nonattendees at a familial cancer clinic.

  Lobb EA. et al, (2009), Genet Med, 11, 806 - 811

• Is consent sufficient? A case study of qualitative research with men with intellectual disabilities

  Ponder M. et al, (2009), The Limits of Consent: A Socio-Ethical Approach to Human Subject Research in Medicine

• Consent to genetic testing: A family affair?

  Hallowell N., (2009), The Limits of Consent: A Socio-Ethical Approach to Human Subject Research in Medicine

• Distinguishing research from clinical care in cancer genetics: theoretical justifications and practical strategies.

  Hallowell N. et al, (2009), Soc Sci Med, 68, 2010 - 2017

• Attendance of men at the familial cancer clinic: what they value from the consultation.

  Lobb EA. et al, (2009), Genet Med, 11, 434 - 440

• Contextualising Accounts of Illness: Notions of Responsibility and Blame in White and South Asian Respondents' Accounts of Diabetes Causation

  Lawton J. et al, (2009), Ethnicity, Health and Health Care: Understanding Diversity, Tackling Disadvantage, 92 - 107

• Healthcare professionals' and researchers' understanding of cancer genetics activities: a qualitative interview study.

  Hallowell N. et al, (2009), J Med Ethics, 35, 113 - 119

• Encounters with medical professionals: a crisis of trust or matter of respect?

  Hallowell N., (2008), Med Health Care Philos, 11, 427 - 437

• Genetic research on rare familial disorders: consent and the blurred boundaries between clinical service and research.

  Ponder M. et al, (2008), J Med Ethics, 34, 690 - 694

• 'We should change ourselves, but we can't': accounts of food and eating practices amongst British Pakistanis and Indians with type 2 diabetes.

  Lawton J. et al, (2008), Ethn Health, 13, 305 - 319

• Contextualising accounts of illness: notions of responsibility and blame in white and South Asian respondents' accounts of diabetes causation.

  Lawton J. et al, (2007), Sociol Health Illn, 29, 891 - 906

• Lay understanding of cancer genetics activities in the UK

  Cooke S. et al, (2007), PSYCHO-ONCOLOGY, 16, 265 - 265

• Guilt, blame and responsibility: men's understanding of their role in the transmission of BRCA1/2 mutations within their family.

  Hallowell N. et al, (2006), Sociol Health Illn, 28, 969 - 988

• Erratum: Diabetes service provision: A qualitative study of the experiences and views of Pakistani and Indian patients with Type 2 diabetes (Diabetic Medicine (2006) 23, (1003-1007))

  Lawton J. et al, (2006), Diabetic Medicine, 23

• Diabetes service provision: a qualitative study of the experiences and views of Pakistani and Indian patients with Type 2 diabetes.

  Lawton J. et al, (2006), Diabet Med, 23, 1003 - 1007

• Seeking ethical approval: Opening up the lines of communication

  Hallowell N. and Lawton J., (2006), Clinical Ethics, 1, 109 - 113

• Varieties of suffering: Living with the risk of ovarian cancer

  Hallowell N., (2006), Health, Risk and Society, 8, 9 - 26

• 'I can't do any serious exercise': barriers to physical activity amongst people of Pakistani and Indian origin with Type 2 diabetes.

  Lawton J. et al, (2006), Health Educ Res, 21, 43 - 54

• Men's decision-making about predictive BRCA1/2 testing: the role of family.

  Hallowell N. et al, (2005), J Genet Couns, 14, 207 - 217

• Communication about genetic testing in families of male BRCA1/2 carriers and non-carriers: patterns, priorities and problems.

  Hallowell N. et al, (2005), Clin Genet, 67, 492 - 502

• Perceptions and experiences of taking oral hypoglycaemic agents among people of Pakistani and Indian origin: qualitative study.

  Lawton J. et al, (2005), BMJ, 330

• Accommodating risk: responses to BRCA1/2 genetic testing of women who have had cancer.

  Hallowell N. et al, (2004), Soc Sci Med, 59, 553 - 565

• High-risk premenopausal women's experiences of undergoing prophylactic oophorectomy: a descriptive study.

  Hallowell N. et al, (2004), Genet Test, 8, 148 - 156

• Commentary

  Clarke A. et al, (2003), Journal of Medical Ethics, 29, 80 - 83

• Balancing autonomy and responsibility: the ethics of generating and disclosing genetic information.

  Hallowell N. et al, (2003), J Med Ethics, 29, 74 - 79

• Negotiating present and future selves: Managing the risk of hereditary ovarian cancer by prophylactic surgery

  Hallowell N. and Lawton J., (2002), Health, 6, 423 - 443

• Genetic testing for women previously diagnosed with breast/ovarian cancer: examining the impact of BRCA1 and BRCA2 mutation searching.

  Hallowell N. et al, (2002), Genet Test, 6, 79 - 87

• Surveillance or surgery? A description of the factors that influence high risk premenopausal women's decisions about prophylactic oophorectomy.

  Hallowell N. et al, (2001), J Med Genet, 38, 683 - 691

• A qualitative study of the information needs of high-risk women undergoing prophylactic oophorectomy.

  Hallowell N., (2000), Psychooncology, 9, 486 - 495

• Advising on the management of genetic risk: Offering choice or prescribing action?

  Hallowell N., (1999), Health, Risk and Society, 1, 267 - 280

• Doing the right thing: Genetic risk and responsibility

  Hallowell N., (1999), Sociology of Health and Illness, 21, 597 - 621

• The value of written summaries of genetic consultations.

  Hallowell N. and Murton F., (1998), Patient Educ Couns, 35, 27 - 34

• Women's Understanding of Their Risk of Developing Breast/Ovarian Cancer Before and After Genetic Counseling.

  Hallowell N. et al, (1998), J Genet Couns, 7, 345 - 364

• Genetic Counseling, Reproductive Behavior and Future Reproductive Intentions of People with Neurofibromatosis Type 1 (NF1).

  Ponder M. et al, (1998), J Genet Couns, 7, 331 - 344

• Providing letters to patients. Patients find summary letters useful.

  Hallowell N., (1998), BMJ, 316

• 'You don't want to lose your ovaries because you think 'I might become a man". Women's perceptions of prophylactic surgery as a cancer risk management option.

  Hallowell N., (1998), Psychooncology, 7, 263 - 275

• The importance of numerical risk information in genetic counselling for breast-ovarian cancer

  Hallowell N. et al, (1997), Genetic Counseling, 8

• Reproductive decision-making, prenatal diagnosis and young adults with NF 1

  Statham H. et al, (1997), Genetic Counseling, 8

• Genetic counselling for breast and ovarian cancer: Why do women attend?

  Statham H. et al, (1997), Genetic Counseling, 8, 179 - 180

• Family communication following genetic counselling for breast/ovarian cancer

  Green JM. et al, (1997), Genetic Counseling, 8, 178 - 179

• "Talking About Chance": The Presentation of Risk Information During Genetic Counseling for Breast and Ovarian Cancer.

  Hallowell N. et al, (1997), J Genet Couns, 6, 269 - 286

• Recall of numerical risk estimates and counsellees' perceptions of the importance of risk information following genetic counselling for breast and ovarian cancer

  Hallowell N. et al, (1997), Psychology, Health and Medicine, 2, 149 - 159

• Family Communication and Genetic Counseling: The Case of Hereditary Breast and Ovarian Cancer.

  Green J. et al, (1997), J Genet Couns, 6, 45 - 60

• Women's need for information before attending genetic counselling for familial breast or ovarian cancer: a questionnaire, interview, and observational study.

  Hallowell N. et al, (1997), BMJ, 314, 281 - 283

• Understanding Life's Lottery: An Evaluation of Studies of Genetic Risk Awareness.

  Hallowell N. and Richards MP., (1997), J Health Psychol, 2, 31 - 43

• Counseling families with hereditary breast and ovarian cancer: A psychosocial perspective.

  Richards MP. et al, (1995), J Genet Couns, 4, 219 - 233

• Up and Down the Ontological Tree: Categories and semantic generalisation

  Russell J. and Hallowell N., (1995), Educational Psychology, 15, 283 - 312

• Attentional bias to threat: roles of trait anxiety, stressful events, and awareness.

  Mogg K. et al, (1994), Q J Exp Psychol A, 47, 841 - 864

• Recall of participation in research projects in cancer genetics: some implications for research ethics

  Parker M. et al, clinical ethics, 3, 180 - 184

• Primary care physicians’ views about gate-keeping in clinical research recruitment: a qualitative study

  Hallowell N. et al, American Journal of Bioethics: Empirical Ethics

• Ethics and research governance: the views of researchers, healthcare professionals and other stakeholders

  Parker M. et al, Clinical ethics, 3, 85 - 90

Recent Publications

• The Psychosocial Impact of Undergoing Prophylactic Total Gastrectomy (PTG) to Manage the Risk of Hereditary Diffuse Gastric Cancer (HDGC).

  Hallowell N. et al, (2017), J Genet Couns, 26, 752 - 762

• Written versus verbal consent: a qualitative study of stakeholder views of consent procedures used at the time of recruitment into a peripartum trial conducted in an emergency setting.

  Lawton J. et al, (2017), BMC Med Ethics, 18

• High-risk individuals' perceptions of reproductive genetic testing for CDH1 mutations.

  Hallowell N. et al, (2017), Fam Cancer

• Staff experiences of closing out a clinical trial involving withdrawal of treatment: qualitative study.

  Lawton J. et al, (2017), Trials, 18

• A qualitative study of patients' perceptions of the value of molecular diagnosis for familial hypercholesterolemia (FH).

  Hallowell N. et al, (2017), J Community Genet, 8, 45 - 52