Dr Jessica Bell
Researcher in Law
As a Researcher in Law Jessica is primarily interested in the legal structuring and governance of large scale research consortia, including biobanks and genetic databases.
Jessica is currently providing legal research support to the Administrative Data Research Network (ADRN). The Administrative Data Research Network is a major partnership between government and academia to improve secure access to administrative data for research that will benefit the UK public.
Jessica was awarded her PhD from the University of Sheffield in May 2016. Her PhD analyses the legal structure of UK Biobank; a large-scale population Biobank with a ‘public good’ mission built upon a corporate architecture.
Before joining the HeLEX Centre, Jessica spent time as a visiting researcher at the Brocher Foundation, Geneva, the Centre for Science, Technology, Medicine and Society, UC Berkeley, and at the Centre of Genomics and Policy, McGill University, Montreal.
Are Requirements to Deposit Data in Research Repositories Compatible With the European Union's General Data Protection Regulation?
Mascalzoni D. et al, (2019), Ann Intern Med
Balancing Data Subjects’ Rights and Public Interest Research:
Bell J. et al, (2019), European Data Protection Law Review, 5, 43 - 53
Lawful Disclosure of Administrative Data for Research Purposes in the UK
BELL J. et al, (2019), The Journal of Data Protection and Privacy
Ursodeoxycholic acid versus placebo in the treatment of women with intrahepatic cholestasis of pregnancy (ICP) to improve perinatal outcomes: protocol for a randomised controlled trial (PITCHES).
Chappell LC. et al, (2018), Trials, 19
Are 'Pseudonymised' Data Always Personal Data? Implications of the GDPR for Administrative Data Research in the UK
(2018), Computer Law and Security Review