INTRODUCTION: We explored how people with dementia (PwD) and their carers navigate Peru's health system for diagnosis and treatment. METHODS: We interviewed PwD (n = 4), carers (n = 18), and healthcare workers (n = 17) from four sites. We developed a patient journey map using thematic analysis and participant validation. RESULTS: Three journey stages emerged. Pre-diagnosis: Families seek care across different sub-health systems and facilities 2-4 years after symptom onset. DIAGNOSIS: Specialist consultation is sought in major cities and diagnosis occurs in hospitals based on clinical presentation. Continuity of care: Care focuses on controlling behavioral and psychological symptoms, with limited access to dementia-specific drugs and non-pharmacological interventions, and heavy reliance on carers' resources. Community mental health centers (CMHCs) are preferred facilities due to geographical and specialist accessibility and perceived care quality. DISCUSSION: Without a formal entry point to dementia care, families navigate fragmented pathways, whereas CMHCs emerge as facilities with adequate care procedures for PwD.
Journal article
2026-07-01T00:00:00+00:00
22
Peru, caregiver, comorbidities, comorbidity, dementia, diagnosis, fragmented health system, patient journey, quality of care, Humans, Dementia, Caregivers, Peru, Female, Male, Aged, Middle Aged, Health Services Accessibility, Aged, 80 and over