The patient journey for people with dementia and their carers in Peru: From first symptoms to diagnosis and treatment.

Rossini-Vilchez D., Tateishi-Serruto FJ., Butler C., Cuba-Fuentes MS., Perez-Leon S., Lúcar-Flores M., Almeida-Huanca G., Olaya-Silva LC., Miranda JJ., Cardenas MK., Tudela JCV., Bernabe-Ortiz A., Calvo RA., Diez-Canseco F., Landeiro FT., Moore G., White L., Whiteley W., Lazo-Porras M., Hawkins J., IMPACT Salud Research Group .

INTRODUCTION: We explored how people with dementia (PwD) and their carers navigate Peru's health system for diagnosis and treatment. METHODS: We interviewed PwD (n = 4), carers (n = 18), and healthcare workers (n = 17) from four sites. We developed a patient journey map using thematic analysis and participant validation. RESULTS: Three journey stages emerged. Pre-diagnosis: Families seek care across different sub-health systems and facilities 2-4 years after symptom onset. DIAGNOSIS: Specialist consultation is sought in major cities and diagnosis occurs in hospitals based on clinical presentation. Continuity of care: Care focuses on controlling behavioral and psychological symptoms, with limited access to dementia-specific drugs and non-pharmacological interventions, and heavy reliance on carers' resources. Community mental health centers (CMHCs) are preferred facilities due to geographical and specialist accessibility and perceived care quality. DISCUSSION: Without a formal entry point to dementia care, families navigate fragmented pathways, whereas CMHCs emerge as facilities with adequate care procedures for PwD.

DOI

10.1002/alz.71581

Type

Journal article

Publication Date

2026-07-01T00:00:00+00:00

Volume

22

Keywords

Peru, caregiver, comorbidities, comorbidity, dementia, diagnosis, fragmented health system, patient journey, quality of care, Humans, Dementia, Caregivers, Peru, Female, Male, Aged, Middle Aged, Health Services Accessibility, Aged, 80 and over

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