Crispin Jenkinson

• Living with breathlessness in chronic heart failure: a qualitative study.

  Walthall H. et al, (2017), J Clin Nurs, 26, 2036 - 2044

• Patient-Reported Outcome Measure for Early Postoperative Recovery Following Lower Limb Arthroplasty: A Systematic Review.

  Strickland LH. et al, (2016), J Arthroplasty, 31, 2933 - 2940

• Spanish version of the Parkinson's Disease Questionnaire-Carer (PDQ-Carer).

  Ferrer-Cascales R. et al, (2016), Health Qual Life Outcomes, 14

• Pretesting an e-based version of the Oxford Participation and Activities Questionnaire (Ox-PAQ)

  Kelly L. et al, (2016), Value in Health, 19, A485 - A485

• Cost-utility analysis of deep brain stimulation surgery plus best medical therapy versus best medical therapy in patients with Parkinson's: Economic evaluation alongside the PD SURG trial.

  McIntosh E. et al, (2016), Mov Disord, 31, 1173 - 1182

• Measuring the impact of parental illness

  Kelly L. et al, (2016), Children’s and young people’s response to parental illness, 221 - 244

• Children’s and young people’s response to parental illness: introduction and overview

  Morley DP. and Jenkinson C., (2016), Children and Young People’s Response to Parental Illness: A Handbook of Assessment and Practice, 1 - 4

• Patients' experiences of deep brain stimulation for Parkinson's disease: a qualitative systematic review and synthesis.

  Mathers J. et al, (2016), BMJ Open, 6

• Comparing the functioning and well-being of people with motor neurone disease, multiple sclerosis and Parkinson’s disease

  Morley DP. et al, (2016), European Journal of Neurology, 23, 645 - 645

• Derivation and Validation of a Modified Short Form of the Stroke Impact Scale.

  MacIsaac R. et al, (2016), J Am Heart Assoc, 5

• Measurement properties of multidimensional patient-reported outcome measures in neurodisability: a systematic review of evaluation studies.

  Janssens A. et al, (2016), Dev Med Child Neurol, 58, 437 - 451

• Patient reported outcomes.

  Jenkinson C. and Morley D., (2016), Eur J Cardiovasc Nurs, 15, 112 - 113

• Validation of the Oxford Participation and Activities Questionnaire.

  Morley D. et al, (2016), Patient Relat Outcome Meas, 7, 73 - 80

• The Long-Term Conditions Questionnaire: conceptual framework and item development.

  Peters M. et al, (2016), Patient Relat Outcome Meas, 7, 109 - 125

• Refinement of the Long-Term Conditions Questionnaire (LTCQ): patient and expert stakeholder opinion.

  Kelly L. et al, (2016), Patient Relat Outcome Meas, 7, 183 - 193

• The Oxford Participation & Activities Questionnaire (Ox-Paq): Psychometric Analysis.

  Morley D. et al, (2015), Value Health, 18

• Measuring the effects of online health information: Scale validation for the e-Health Impact Questionnaire.

  Kelly L. et al, (2015), Patient Educ Couns, 98, 1418 - 1424

• Measuring the effects of online health information: Scale validation for the e-Health Impact Questionnaire

  Kelly L. et al, (2015), Patient Education and Counseling, 98, 1418 - 1424

• Comparing results from long and short form versions of the Parkinson's disease questionnaire in a longitudinal study.

  Jenkinson C. et al, (2015), Parkinsonism Relat Disord, 21, 1312 - 1316

• Comparing results from long and short form versions of the Parkinson's disease questionnaire in a longitudinal study

  Jenkinson C. et al, (2015), Parkinsonism and Related Disorders, 21, 1312 - 1316

• Using cognitive interviews to assess and refine the Coeliac Disease Assessment Questionnaire (CDAQ)

  Crocker H. et al, (2015), QUALITY OF LIFE RESEARCH, 24, 157 - 157

• Refining items in the Long-Term Conditions Questionnaire (LTCQ): cognitive interviews, stakeholder feedback and translatability assessment

  Potter C. et al, (2015), QUALITY OF LIFE RESEARCH, 24, 142 - 143

• Mapping from the Parkinson's Disease Questionnaire PDQ-39 to the Generic EuroQol EQ-5D-3L: The Value of Mixture Models.

  Kent S. et al, (2015), Med Decis Making, 35, 902 - 911

• Item generation for the Long-Term Conditions Questionnaire (LTCQ): qualitative interviews with patients

  Potter C. et al, (2015), QUALITY OF LIFE RESEARCH, 24, 162 - 162

• Outcome measurement in neurodegenerative disease: attributes, applications & interpretation.

  Kelly L. et al, (2015), Neurodegener Dis Manag, 5, 305 - 316

• Meaningful health outcomes for paediatric neurodisability: Stakeholder prioritisation and appropriateness of patient reported outcome measures.

  Morris C. et al, (2015), Health Qual Life Outcomes, 13

• Perspectives from health, social care and policy stakeholders on the value of a single self-report outcome measure across long-term conditions: a qualitative study.

  Hunter C. et al, (2015), BMJ Open, 5

• THE PARKINSON'S DISEASE QUESTIONNAIRE (PDQ-39) - EVALUATING THE PSYCHOMETRIC PROPERTIES OF AN ELECTRONIC VERSION

  Morley D. et al, (2015), VALUE IN HEALTH, 18, A286 - A286

• A systematic review of generic multidimensional patient-reported outcome measures for children, part I: descriptive characteristics.

  Janssens A. et al, (2015), Value Health, 18, 315 - 333

• A systematic review of generic multidimensional patient-reported outcome measures for children, part II: evaluation of psychometric performance of English-language versions in a general population.

  Janssens A. et al, (2015), Value Health, 18, 334 - 345

• Evaluating the psychometric properties of an e-based version of the 39-item Parkinson's Disease Questionnaire.

  Morley D. et al, (2015), Health Qual Life Outcomes, 13

• The Outcomes and Experiences Questionnaire: development and validation.

  Gibbons E. et al, (2015), Patient Relat Outcome Meas, 6, 179 - 189

• Strategies and challenges for monitoring patient experience at the local level

  Graham C. et al, (2015), International Journal of Healthcare Management, 8, 1 - 3

• Strategies and challenges for monitoring patient experience at the local level

  Graham CN. et al, (2015), International Journal of Healthcare Management, 8, 1 - 3

• Development of the Oxford Participation and Activities Questionnaire: constructing an item pool.

  Kelly L. et al, (2015), Patient Relat Outcome Meas, 6, 145 - 155

• A systematic review of generic multidimensional patient-reported outcome measures for children, part I: Descriptive characteristics

  Janssens A. et al, (2015), Value in Health, 18, 315 - 333

• The Endometriosis Health Profile (Ehp) - A Case Study of Successful Epro Collaboration.

  Two R. et al, (2014), Value Health, 17, A517 - A518

• Can pain and function be distinguished in the Oxford Hip Score in a meaningful way? : an exploratory and confirmatory factor analysis.

  Harris KK. et al, (2014), Bone Joint Res, 3, 305 - 309

• An Electronic Version of the Pdq-39: Acceptability To Respondents and Assessment of Alternative Response formats.

  Morley D. et al, (2014), Value Health, 17

• The Outcomes and Experiences Questionnaire (OEQ): Development and Validation

  Gibbons E. et al, (2014), Quality of Life Research, 23(S1)

• Patient-reported outcome measurement in primary care for people with long-term conditions: stakeholders views

  Gibbons EJ. et al, (2014), QUALITY OF LIFE RESEARCH, 23, 96 - 96

• Generating items for the Oxford Participation and Activities Questionnaire (Ox-PAQ)

  Kelly L. et al, (2014), Quality of Life Research, 23(S1), 81 - 82

• Enabling and supporting people to live with Long-Term conditions: qualitative and conceptual development of a patient-reported outcome measure (PRO)

  Hunter C. et al, (2014), QUALITY OF LIFE RESEARCH, 23, 121 - 122

• Developing the coeliac disease assessment questionnaire (CDAQ): an assessment of translatability

  Crocker H. et al, (2014), QUALITY OF LIFE RESEARCH, 23, 178 - 178

• Long-term effectiveness of dopamine agonists and monoamine oxidase B inhibitors compared with levodopa as initial treatment for Parkinson's disease (PD MED): a large, open-label, pragmatic randomised trial.

  PD Med Collaborative Group None. et al, (2014), Lancet, 384, 1196 - 1205

• The OxCAP-MH: a Novel, Multi-dimensional, Patient-Reported Capabilities Instrument for Mental Health Research and Policy

  Simon J. et al, (2014), JOURNAL OF MENTAL HEALTH POLICY AND ECONOMICS, 17, S21 - S21

• Change in health status in long-term conditions over a one year period: a cohort survey using patient-reported outcome measures.

  Peters M. et al, (2014), Health Qual Life Outcomes, 12

• Medical education leaders' perceptions of postgraduate medical education reform.

  Ovseiko PV. et al, (2014), Lancet, 384, 306 - 307

• Minimally important change was estimated for the Manchester-Oxford Foot Questionnaire after foot/ankle surgery.

  Dawson J. et al, (2014), J Clin Epidemiol, 67, 697 - 705

• The routine collection of patient-reported outcome measures (PROMs) for long-term conditions in primary care: A cohort survey

  Peters M. et al, (2014), BMJ Open, 4

• The development and validation of a patient-reported quality of life measure for people with mild cognitive impairment.

  Dean K. et al, (2014), Int Psychogeriatr, 26, 487 - 497

• The development and validation of a patient-reported quality of life measure for people with mild cognitive impairment

  Dean K. et al, (2014), International Psychogeriatrics, 26, 487 - 497

• Exploring the experiences of people with mild cognitive impairment and their caregivers with particular reference to healthcare - A qualitative study

  Dean K. et al, (2014), International Psychogeriatrics, 26, 475 - 485

• Exploring the experiences of people with mild cognitive impairment and their caregivers with particular reference to healthcare - a qualitative study.

  Dean K. et al, (2014), Int Psychogeriatr, 26, 475 - 485

• Development of a patient-reported outcome measure of activity and participation (the OKS-APQ) to supplement the Oxford knee score.

  Dawson J. et al, (2014), Bone Joint J, 96-B, 332 - 338

• The routine collection of patient-reported outcome measures (PROMs) for long-term conditions in primary care: a cohort survey.

  Peters M. et al, (2014), BMJ Open, 4

• People with limiting long-term conditions report poorer experiences and more problems with hospital care

  Hewitson P. et al, (2014), BMC Health Services Research, 14

• People with limiting long-term conditions report poorer experiences and more problems with hospital care.

  Hewitson P. et al, (2014), BMC Health Serv Res, 14

• Patient reports of the outcomes of treatment: a structured review of approaches.

  Lloyd H. et al, (2014), Health Qual Life Outcomes, 12

• Minimally important change was estimated for the Manchester-Oxford Foot Questionnaire after foot/ankle surgery

  Dawson J. et al, (2014), Journal of Clinical Epidemiology, 67, 697 - 705

• Development of a patient-reported outcome measure of activity and participation (the OKSAPQ) to supplement the Oxford knee score

  Dawson J. et al, (2014), Bone and Joint Journal, 96 B, 332 - 338

• An electronic version of the PDQ-39: acceptability to respondents and assessment of alternative response formats.

  Morley D. et al, (2014), J Parkinsons Dis, 4, 467 - 472

• Measuring the effects of online health information for patients: item generation for an e-health impact questionnaire.

  Kelly L. et al, (2013), Patient Educ Couns, 93, 433 - 438

• Measuring the effects of online health information for patients: Item generation for an e-health impact questionnaire

  Kelly L. et al, (2013), Patient Education and Counseling, 93, 433 - 438

• THE E-HEALTH IMPACT QUESTIONNAIRE: DEVELOPING A TOOL TO MEASURE THE EFFECTS OF USING HEALTH-RELATED WEBSITES

  Kelly L. et al, (2013), VALUE IN HEALTH, 16, A605 - A605

• THE DEVELOPMENT AND VALIDATION OF A QUALITY OF LIFE MEASURE FOR PEOPLE WITH MILD COGNITIVE IMPAIRMENT (THE MCQ)

  Dean K. et al, (2013), VALUE IN HEALTH, 16, A550 - A550

• EPRO MIGRATION AND USABILITY TESTING OF PATIENT-REPORTED OUTCOME (PRO) MEASURES

  Wilkins G. et al, (2013), VALUE IN HEALTH, 16, A597 - A597

• Can pain and function be distinguished in the Oxford Knee Score in a meaningful way? An exploratory and confirmatory factor analysis.

  Harris K. et al, (2013), Qual Life Res, 22, 2561 - 2568

• Quality of life in coeliac disease: the qualitative development of a new patient-reported outcome measure

  Crocker H. et al, (2013), QUALITY OF LIFE RESEARCH, 22

• Patient-reported outcomes in long-term conditions: a cohort survey in England

  Peters M. et al, (2013), QUALITY OF LIFE RESEARCH, 22

• Development & Validation of the Oxford Participation & Activities Questionnaire: Exploring the Views of Relevant Stakeholders.

  Kelly L. et al, (2013), Quality of Life Research, 22(S1), 119 - 120

• Developing a tool to measure the effects of using health-related websites (the e-Health Impact Questionnaire)

  Kelly L. et al, (2013), QUALITY OF LIFE RESEARCH, 22

• The Stroke Impact Scale: validation in a UK setting and development of a SIS short form and SIS index.

  Jenkinson C. et al, (2013), Stroke, 44, 2532 - 2535

• EXPERIENCES OF HEALTHCARE SERVICES IN PEOPLE WITH MILD COGNITIVE IMPAIRMENT AND THEIR CARERS

  Dean KJ. et al, (2013), AGE AND AGEING, 42, 27 - 28

• Carer quality of life and experiences of health services: a cross-sectional survey across three neurological conditions.

  Peters M. et al, (2013), Health Qual Life Outcomes, 11

• An exploration of social and economic outcome and associated health-related quality of life after critical illness in general intensive care unit survivors: a 12-month follow-up study.

  Griffiths J. et al, (2013), Crit Care, 17

• TRANSLATABILITY ASSESSMENT OF THE E-HEALTH IMPACT QUESTIONNAIRE (E-HIQ)

  Kelly L. et al, (2013), VALUE IN HEALTH, 16, A45 - A45

• The PDQ-Carer: development and validation of a summary index score.

  Morley D. et al, (2013), Parkinsonism Relat Disord, 19, 448 - 449

• A structured review of patient reported outcome measures used for cosmetic surgical procedures

  Morley DP. et al, (2013), 1 - 49

• The Oxford Participation and Activities Questionnaire: study protocol.

  Morley D. et al, (2013), Patient Relat Outcome Meas, 5, 1 - 6

• The Manchester-Oxford Foot Questionnaire (MOXFQ): Development and validation of a summary index score.

  Morley D. et al, (2013), Bone Joint Res, 2, 66 - 69

• Patients' experiences of health and social care in long-term neurological conditions in England: a cross-sectional survey.

  Peters M. et al, (2013), J Health Serv Res Policy, 18, 28 - 33

• Furthering our understanding of the needs of adolescent children of parents with Parkinson's disease.

  Morley D. and Jenkinson C., (2013), Adolesc Health Med Ther, 4, 75 - 77

• CARERS OF PEOPLE WITH PARKINSON'S DISEASE: FACTORS RELATED TO QUALITY OF LIFE

  Morley D. et al, (2012), VALUE IN HEALTH, 15, A557 - A557

• A MEASURE OF CARER QUALITY OF LIFE IN PARKINSON'S DISEASE (PDQ-CARER): DEVELOPMENT AND VALIDATION OF A SUMMARY INDEX SCORE

  Jenkinson C. et al, (2012), VALUE IN HEALTH, 15, A556 - A556

• Developing and pre-testing an item pool relating to the effects of exposure to health websites

  Kelly L. et al, (2012), QUALITY OF LIFE RESEARCH, 21, 113 - 113

• Factors associated with patient satisfaction with foot and ankle surgery in a large prospective study

  Dawson J. et al, (2012), Foot, 22, 211 - 218

• Factors associated with patient satisfaction with foot and ankle surgery in a large prospective study.

  Dawson J. et al, (2012), Foot (Edinb), 22, 211 - 218

• Developing symptom-based predictive models of endometriosis as a clinical screening tool: results from a multicenter study.

  Nnoaham KE. et al, (2012), Fertil Steril, 98, 692 - 701.e5

• Developing symptom-based predictive models of endometriosis as a clinical screening tool: Results from a multicenter study

  Nnoaham KE. et al, (2012), Fertility and Sterility, 98

• A scoring system for the foot and ankle that is acceptable, reliable, valid and responsive

  Dawson J. et al, (2012), Foot, 22, 267 - 268

• A scoring system for the foot and ankle that is acceptable, reliable, valid and responsive.

  Dawson J. et al, (2012), Foot (Edinb), 22, 267 - 268

• Quality in the provision of headache care. 1: systematic review of the literature and commentary.

  Peters M. et al, (2012), J Headache Pain, 13, 437 - 447

• Quality in the provision of headache care. 2: defining quality and its indicators.

  Peters M. et al, (2012), J Headache Pain, 13, 449 - 457

• Quality in the provision of headache care. 2: Defining quality and its indicators

  Peters M. et al, (2012), Journal of Headache and Pain, 13, 449 - 457

• Quality in the provision of headache care. 1: Systematic review of the literature and commentary

  Peters M. et al, (2012), Journal of Headache and Pain, 13, 437 - 447

• The development and validation of a quality of life measure for the carers of people with Parkinson's disease (the PDQ-Carer)

  Jenkinson C. et al, (2012), Parkinsonism and Related Disorders, 18, 483 - 487

• The development and validation of a quality of life measure for the carers of people with Parkinson's disease (the PDQ-Carer).

  Jenkinson C. et al, (2012), Parkinsonism Relat Disord, 18, 483 - 487

• PARKINSON'S DISEASE QUESTIONNAIRE (PDQ-39) AS A PRIMARY ENDPOINT IN A TRIAL COMPARING DEEP BRAIN STIMULATION WITH BEST MEDICAL THERAPY VERSUS BEST MEDICAL THERAPY ALONE FOR ADVANCED PARKINSON'S DISEASE (PD SURG TRIAL): A RANDOMISED, OPEN-LABEL TRIAL

  Jenkinson C. et al, (2012), VALUE IN HEALTH, 15, A148 - A148

• Fabry International Prognostic Index: a predictive severity score for Anderson-Fabry disease.

  Hughes DA. et al, (2012), J Med Genet, 49, 212 - 220

• Fabry international prognostic index: A predictive severity score for Anderson-Fabry disease

  Hughes DA. et al, (2012), Journal of Medical Genetics, 49, 212 - 220

• The impact of perceived lack of support provided by health and social care services to caregivers of people with motor neuron disease.

  Peters M. et al, (2012), Amyotroph Lateral Scler, 13, 223 - 228

• Responsiveness of the Manchester-Oxford foot questionnaire (MOXFQ) compared with AOFAS, SF-36 and EQ-5D assessments following foot or ankle surgery

  Dawson J. et al, (2012), Journal of Bone and Joint Surgery - Series B, 94 B, 215 - 221

• Responsiveness of the Manchester-Oxford Foot Questionnaire (MOXFQ) compared with AOFAS, SF-36 and EQ-5D assessments following foot or ankle surgery.

  Dawson J. et al, (2012), J Bone Joint Surg Br, 94, 215 - 221

• Patients Evaluaction of Hospital Treatment: A Structured Review (MT)

  Peters M. et al, (2012), QUALITY OF LIFE RESEARCH, 20, 73 - 73

• Factors related to the Quality of Life of Carers of People with Parkinson’s Disease

  Peters M. et al, (2012), 21, 75 - 76

• Factors influencing quality of life in caregivers of people with Parkinson's disease and implications for clinical guidelines.

  Morley D. et al, (2012), Parkinsons Dis, 2012

• DEVELOPING A MEASURE OF PARKINSON'S CARER QUALITY OF LIFE (PDQ-CARER)

  Jenkinson C. et al, (2011), EUROPEAN JOURNAL OF NEUROLOGY, 18, 644 - 644

• Impact of endometriosis on quality of life and work productivity: a multicenter study across ten countries.

  Nnoaham KE. et al, (2011), Fertil Steril, 96, 366 - 373.e8

• Impact of endometriosis on quality of life and work productivity: A multicenter study across ten countries

  Nnoaham KE. et al, (2011), Fertility and Sterility, 96

• Responsiveness and minimally important change for the Manchester-Oxford foot questionnaire (MOXFQ) compared with AOFAS and SF-36 assessments following surgery for hallux valgus (vol 15, pg 918, 2007)

  Dawson J. et al, (2011), OSTEOARTHRITIS AND CARTILAGE, 19, 920 - 920

• Erratum to "Responsiveness and minimally important change for the Manchester-Oxford foot questionnaire (MOXFQ) compared with AOFAS and SF-36 assessments following surgery for hallux valgus" [Osteoarthritis and Cartilage 2007;15:918-931]

  Dawson J. et al, (2011), Osteoarthritis and Cartilage, 19

• The MOXFQ patient-reported questionnaire: assessment of data quality, reliability and validity in relation to foot and ankle surgery.

  Dawson J. et al, (2011), Foot (Edinb), 21, 92 - 102

• Does self-reported well-being of patients with Parkinson's disease influence caregiver strain and quality of life?

  Peters M. et al, (2011), Parkinsonism and Related Disorders, 17, 348 - 352

• Does self-reported well-being of patients with Parkinson's disease influence caregiver strain and quality of life?

  Peters M. et al, (2011), Parkinsonism Relat Disord, 17, 348 - 352

• THE ASSOCIATION BETWEEN PARKININSON'S DISEASE QUESTIONNAIRE (PDQ) SCORES WITH CARER STRAIN AND QUALITY OF LIFE

  Jenkinson C. et al, (2011), VALUE IN HEALTH, 14, A209 - A209

• DEVELOPMENT AND VALIDATION OF A SHORT PRO MEASURE OF HEALTH STATUS FOR INDIVIDUALS WITH ACUTE MYOCARDIAL INFARCTION: THE MYOCARDIAL INFARCTION DIMENSIONAL ASSESSMENT SCALE (MIDAS)

  Jenkinson C. et al, (2011), VALUE IN HEALTH, 14, A52 - A52

• A PATIENT-BASED QUESTIONANIRE TO ASSESS OUTCOMES OF FOOT SURGERY: VALIDATION IN THE CONTEXT OF SURGERY FOR HALLUX VALGUS

  Dawson J. et al, (2011), VALUE IN HEALTH, 14, A90 - A90

• Quality of Life Measurement in Neurodegenerative and Related Conditions

  Jenkinson C. et al, (2011)

• Clinical Symptoms as Predictors of a Surgical Diagnosis of Endometriosis

  Zondervan KT. et al, (2011), REPRODUCTIVE SCIENCES, 18, 275A - 275A

• The development and validation of the Parkinson’s disease questionnaire and related measures

  Jenkinson C. and Fitzpatrick R., (2011), Quality of Life Measurement in Neurodegenerative and Related Conditions, 10 - 23

• Patient-reported outcome measurement inmotor neuron disease/amyotrophic lateral sclerosis – the ALSAQ-40 and ALSAQ-5

  Jenkinson C., (2011), Quality of Life Measurement in Neurodegenerative and Related Conditions, 41 - 51

• Erratum to "Responsiveness and minimally important change for the Manchester-Oxford foot questionnaire (MOXFQ) compared with AOFAS and SF-36 assessments following surgery for hallux valgus" [Osteoarthritis and Cartilage 2007;15:918-931] (DOI:10.1016/j.joca.2007.02.003)

  Dawson J. et al, (2011), Osteoarthritis and Cartilage

• Aspects of methodology relevant to patient-reported outcome measures (PROMs)

  Jenkinson C. et al, (2011), Quality of Life Measurement in Neurodegenerative and Related Conditions, 1 - 9

• A method for imputing missing questionnaire data

  Jenkinson C. et al, (2011), Quality of Life Measurement in Neurodegenerative and Related Conditions, 165 - 173

• Do South Asian women with PCOS have poorer health-related quality of life than Caucasian women with PCOS? A comparative cross-sectional study.

  Jones GL. et al, (2010), Health Qual Life Outcomes, 8

• Outcome selection and role of patient reported outcomes in contemporary cardiovascular trials: Systematic review

  Rahimi K. et al, (2010), BMJ (Online), 341

• Outcome selection and role of patient reported outcomes in contemporary cardiovascular trials: systematic review.

  Rahimi K. et al, (2010), BMJ, 341

• The Use of Apomorphine in the PD SURG Trial

  Rick C. et al, (2010), MOVEMENT DISORDERS, 25, S677 - S678

• Global study of women's health: a multi-centre study of the global impact of endometriosis

  Nnoaham KE. et al, (2010), HUMAN REPRODUCTION, 25, I9 - I9

• Deep brain stimulation plus best medical therapy versus best medical therapy alone for advanced Parkinson's disease (PD SURG trial): a randomised, open-label trial.

  Williams A. et al, (2010), Lancet Neurol, 9, 581 - 591

• EVALUATION OF THE AMERICAN (USA) VERSION OF THE ENDOMETRIOSIS HEALTH PROFILE (EHP-30)

  Jenkinson C. et al, (2010), VALUE IN HEALTH, 13, A185 - A185

• CROSS CULTURAL EVALUATION OF THE SHORT FORM 8 ITEM PARKINSON'S DISEASE QUESTIONNAIRE: RESULTS FROM AMERICA, CANADA, JAPAN, ITALY AND SPAIN

  Jenkinson C. et al, (2010), VALUE IN HEALTH, 13, A142 - A142

• Quality of life in patients with Parkinson's disease: Translation and psychometric evaluation of the Iranian version of PDQ-39.

  Nojomi M. et al, (2010), J Res Med Sci, 15, 63 - 69

• Multi-Centre Studies of the Global Impact of Endometriosis and the Predictive Value of Associated Symptoms.

  Nnoaham KE. et al, (2010), REPRODUCTIVE SCIENCES, 17, 95A - 96A

• A systematic review of outcome measures used in forensic mental health research with consensus panel opinion.

  Fitzpatrick R. et al, (2010), Health Technol Assess, 14, 1 - 94

• The routine use of patient reported outcome measures in healthcare settings.

  Dawson J. et al, (2010), BMJ, 340

• Development of the Motor Neuron Disease Carer Questionnaire.

  Mockford C. et al, (2009), Amyotroph Lateral Scler, 10, 463 - 469

• How can patients' views of their care enhance quality improvement?

  Black N. and Jenkinson C., (2009), BMJ (Online), 339, 202 - 205

• Measuring patients' experiences and outcomes.

  Black N. and Jenkinson C., (2009), BMJ, 339

• Quality of life in amyotrophic lateral sclerosis/motor neuron disease: a structured review.

  Epton J. et al, (2009), Amyotroph Lateral Scler, 10, 15 - 26

• Outcome measures used in forensic mental health research: a structured review.

  Chambers JC. et al, (2009), Crim Behav Ment Health, 19, 9 - 27

• MULTI-CENTRE STUDIES OF THE GLOBAL IMPACT OF ENDOMETRIOSIS AND THE PREDICTIVE VALUE OF ASSOCIATED SYMPTOMS.

  Nnoaham KE. et al, (2009), J Endometr, 1, 36 - 45

• Evaluation of the American version of the 30-item Endometriosis Health Profile (EHP-30).

  Jenkinson C. et al, (2008), Qual Life Res, 17, 1147 - 1152

• Health Status Measurement and Outcomes

  Jenkinson C., (2008), Research and Development in Clinical Nursing Practice, 170 - 189

• The development and validation of a patient-reported questionnaire to assess outcomes of elbow surgery.

  Dawson J. et al, (2008), J Bone Joint Surg Br, 90, 466 - 473

• Evaluation of the Dutch version of the Parkinson's Disease Questionnaire 39.

  Marinus J. et al, (2008), Parkinsonism Relat Disord, 14, 24 - 27

• The scientific assessment of subjective outcome after laparoscopic urological procedures.

  Keoghane SR. et al, (2007), BJU Int, 100, 1215 - 1216

• Factors associated with satisfaction with bunion surgery in women: A prospective study

  Dawson J. et al, (2007), Foot, 17, 119 - 125

• Responsiveness and minimally important change for the Manchester-Oxford foot questionnaire (MOXFQ) compared with AOFAS and SF-36 assessments following surgery for hallux valgus.

  Dawson J. et al, (2007), Osteoarthritis Cartilage, 15, 918 - 931

• Health-status of adult survivors of childhood cancer: a large-scale population-based study from the British Childhood Cancer Survivor Study.

  Reulen RC. et al, (2007), Int J Cancer, 121, 633 - 640

• The development and initial psychometric testing of the ermotional health in infertility questionnaire (EHIQ)

  Farmer GA. et al, (2007), HUMAN REPRODUCTION, 22, I87 - I88

• Rethinking the cardinal symptoms of endometriosis and their relationship to quality of life: feeling sick, tired and pain on bowel movements

  Jones GL. et al, (2007), HUMAN REPRODUCTION, 22, I48 - I48

• A pilot evaluation of specialist community pharmacy services for patients with Parkinson's disease

  Mynors G. et al, (2007), Pharmaceutical Journal, 278, 709 - 712

• The Amyotrophic Lateral Sclerosis Assessment Questionnaire (ALSAQ-40): evidence for a method of imputing missing data.

  Jenkinson C. et al, (2007), Amyotroph Lateral Scler, 8, 90 - 95

• Testing the validity of the PDQ-39 in patients with MSA.

  Schrag A. et al, (2007), Parkinsonism Relat Disord, 13, 152 - 156

• Comparison of the 40-item Amyotrophic Lateral Sclerosis Assessment Questionnaire (ALSAQ-40) with a short-form five-item version (ALSAQ-5) in a longitudinal survey.

  Jenkinson C. et al, (2007), Clin Rehabil, 21, 266 - 272

• Cross-cultural evaluation of the short form 8-item Parkinson's Disease Questionnaire (PDQ-8): results from America, Canada, Japan, Italy and Spain.

  Jenkinson C. and Fitzpatrick R., (2007), Parkinsonism Relat Disord, 13, 22 - 28

• The use of the SF-36 questionnaire in adult survivors of childhood cancer: evaluation of data quality, score reliability, and scaling assumptions.

  Reulen RC. et al, (2006), Health Qual Life Outcomes, 4

• Measuring quality of life in women with endometriosis: tests of data quality, score reliability, response rate and scaling assumptions of the Endometriosis Health Profile Questionnaire.

  Jones G. et al, (2006), Hum Reprod, 21, 2686 - 2693

• The Parkinson's Disease Questionnaire (PDQ-39): evidence for a method of imputing missing data.

  Jenkinson C. et al, (2006), Age Ageing, 35, 497 - 502

• A Review: carers, MND and service provision.

  Mockford C. et al, (2006), Amyotroph Lateral Scler, 7, 132 - 141

• A patient-based questionnaire to assess outcomes of foot surgery: validation in the context of surgery for hallux valgus.

  Dawson J. et al, (2006), Qual Life Res, 15, 1211 - 1222

• The impact of HIV on maternal quality of life in Uganda.

  Nuwagaba-Biribonwoha H. et al, (2006), AIDS Care, 18, 614 - 620

• Management of respiration in MND/ALS patients: an evidence based review.

  Heffernan C. et al, (2006), Amyotroph Lateral Scler, 7, 5 - 15

• Patient attitudes to clinical trials: development of a questionnaire and results from asthma and cancer patients.

  Jenkinson C. et al, (2005), Health Expect, 8, 244 - 252

• European patients' views on the responsiveness of health systems and healthcare providers.

  Coulter A. and Jenkinson C., (2005), Eur J Public Health, 15, 355 - 360

• Measuring outcomes for neurological disorders: a review of disease-specific health status instruments for three degenerative neurological conditions.

  Heffernan C. and Jenkinson C., (2005), Chronic Illn, 1, 131 - 142

• Impact of gastrostomy tube feeding on the quality of life of carers of children with cerebral palsy.

  Sullivan PB. et al, (2004), Dev Med Child Neurol, 46, 796 - 800

• Health-related quality of life in amyotrophic lateral sclerosis: determining a meaningful deterioration.

  Norquist JM. et al, (2004), Qual Life Res, 13, 1409 - 1414

• Effect of endometriosis treatment on quality of life measured using the EHP-30.

  Kennedy S. and Jenkinson C., (2004), FERTILITY AND STERILITY, 82, S69 - S69

• A children's acute respiratory illness scale (CARIFS) predicted functional severity and family burden.

  Shepperd S. et al, (2004), J Clin Epidemiol, 57, 809 - 814

• The impact of endometriosis upon quality of life: a qualitative analysis.

  Jones G. et al, (2004), J Psychosom Obstet Gynaecol, 25, 123 - 133

• Nutritional management in MND/ALS patients: an evidence based review.

  Heffernan C. et al, (2004), Amyotroph Lateral Scler Other Motor Neuron Disord, 5, 72 - 83

• Mailed questionnaires: quality matters - Reply

  Jenkinson C. and Richards N., (2004), JOURNAL OF PUBLIC HEALTH, 26, 214 - 215

• Mailed questionnaires: length matters.

  Edwards P., (2004), J Public Health (Oxf), 26

• Evaluating the responsiveness of the Endometriosis Health Profile Questionnaire: the EHP-30.

  Jones G. et al, (2004), Qual Life Res, 13, 705 - 713

• Development of the Short Form Endometriosis Health Profile Questionnaire: the EHP-5.

  Jones G. et al, (2004), Qual Life Res, 13, 695 - 704

• A comparison of Rasch with Likert scoring to discriminate between patients' evaluations of total hip replacement surgery.

  Fitzpatrick R. et al, (2004), Qual Life Res, 13, 331 - 338

• Distribution-based criteria for change in health-related quality of life in Parkinson's disease.

  Fitzpatrick R. et al, (2004), J Clin Epidemiol, 57, 40 - 44

• Comparing alternative Rasch-based methods vs raw scores in measuring change in health.

  Norquist JM. et al, (2004), Med Care, 42, I25 - I36

• Endocrine effects of nasal continuous positive airway pressure in male patients with obstructive sleep apnoea.

  Meston N. et al, (2003), J Intern Med, 254, 447 - 454

• Properties of the Picker Patient Experience questionnaire in a randomized controlled trial of long versus short form survey instruments.

  Jenkinson C. et al, (2003), J Public Health Med, 25, 197 - 201

• Cross-cultural evaluation of the Parkinson's Disease Questionnaire: tests of data quality, score reliability, response rate, and scaling assumptions in the United States, Canada, Japan, Italy, and Spain.

  Jenkinson C. et al, (2003), J Clin Epidemiol, 56, 843 - 847

• Interpreting change scores on the Amyotrophic Lateral Sclerosis Assessment Questionnaire (ALSAQ-40).

  Jenkinson C. et al, (2003), Clin Rehabil, 17, 380 - 385

• Using the SF-36 measure to compare the health impact of multiple sclerosis and Parkinson's disease with normal population health profiles.

  Riazi A. et al, (2003), J Neurol Neurosurg Psychiatry, 74, 710 - 714

• Factors which predict physical and mental health status in patients with amyotrophic lateral sclerosis over time.

  Norquist JM. et al, (2003), Amyotroph Lateral Scler Other Motor Neuron Disord, 4, 112 - 117

• Health selection in the Whitehall II study, UK.

  Chandola T. et al, (2003), Soc Sci Med, 56, 2059 - 2072

• Factors relating to patients' reports about hospital care for coronary heart disease in England.

  Jenkinson C. et al, (2003), J Health Serv Res Policy, 8, 83 - 86

• Deriving summary indices of health status from the Amyotrophic Lateral Sclerosis Assessment Questionnaires (ALSAQ-40 and ALSAQ-5).

  Jenkinson C. et al, (2003), J Neurol Neurosurg Psychiatry, 74, 242 - 245

• Rasch scoring of outcomes of total hip replacement.

  Fitzpatrick R. et al, (2003), J Clin Epidemiol, 56, 68 - 74

• Rasch measurement in the assessment of amytrophic lateral sclerosis patients.

  Norquist JM. et al, (2003), J Appl Meas, 4, 249 - 257

• Changes in quality of life resulting from treatment for persons with advanced Parkinson's disease: Sumanirole versus placebo

  DuChane J. and Jenkinson C., (2003), VALUE IN HEALTH, 6, 282 - 283

• The coronary heart disease in-patient experience questionnaire (I-PEQ (CHD)): results from the survey of National Health Service patients.

  Jenkinson C. et al, (2002), Qual Life Res, 11, 721 - 727

• Patients' experiences and satisfaction with health care: results of a questionnaire study of specific aspects of care.

  Jenkinson C. et al, (2002), Qual Saf Health Care, 11, 335 - 339

• The Picker Patient Experience Questionnaire: development and validation using data from in-patient surveys in five countries.

  Jenkinson C. et al, (2002), Int J Qual Health Care, 14, 353 - 358

• Measuring the experiences of health care for patients with musculoskeletal disorders (MSD): development of the Picker MSD questionnaire.

  Jenkinson C. et al, (2002), Scand J Caring Sci, 16, 329 - 333

• Development and validation of a short measure of health status for individuals with acute myocardial infarction: the myocardial infarction dimensional assessment scale (MIDAS).

  Thompson DR. et al, (2002), Qual Life Res, 11, 535 - 543

• Health-related quality of life measurement in women with common benign gynecologic conditions: a systematic review.

  Jones GL. et al, (2002), Am J Obstet Gynecol, 187, 501 - 511

• Evaluation of the Dartmouth COOP charts in a large-scale community survey in the United Kingdom.

  Jenkinson C. et al, (2002), J Public Health Med, 24, 106 - 111

• The level of haemoglobin in anaemic cancer patients correlates positively with quality of life.

  Lind M. et al, (2002), Br J Cancer, 86, 1243 - 1249

• Comparing health inequalities among men aged 18-65 years in Australia and England using the SF-36.

  Clarke P. et al, (2002), Aust N Z J Public Health, 26, 136 - 143

• Assessment of health-related quality-of-life in males with Anderson Fabry Disease before therapeutic intervention.

  Miners AH. et al, (2002), Qual Life Res, 11, 127 - 133

• Validation of the French language version of the Parkinson's Disease Questionnaire - PDQ-39

  Auquier P. et al, (2002), Revue Neurologique, 158, 41 - 50

• Use of the short form health survey (SF-36) in patients with amyotrophic lateral sclerosis: tests of data quality, score reliability, response rate and scaling assumptions.

  Jenkinson C. et al, (2002), J Neurol, 249, 178 - 183

• Ambulatory blood pressure after therapeutic and subtherapeutic nasal continuous positive airway pressure for obstructive sleep apnoea: a randomised parallel trial.

  Pepperell JC. et al, (2002), Lancet, 359, 204 - 210

• Validity and reliability of the German language SF-36 health survey in patients with amyotrophic lateral sclerosis

  Pongratz D. et al, (2002), NERVENHEILKUNDE, 21, 432 - +

• [Validation of the French language version of the Parkinson's Disease Questionnaire - PDQ-39].

  Auquier P. et al, (2002), Rev Neurol (Paris), 158, 41 - 50

• Normative data for the SF-12 health survey in the Republic of Ireland with comparisons to England

  Layte R. and Jenkinson C., (2001), Irish Journal of Psychology, 22, 63 - 72

• Measuring mental health in amyotrophic lateral sclerosis (ALS): a comparison of the SF-36 Mental Health Index with the Psychological General Well-Being Index.

  Peto V. et al, (2001), Amyotroph Lateral Scler Other Motor Neuron Disord, 2, 197 - 201

• Review of outcome measures used in adult critical care.

  Black NA. et al, (2001), Crit Care Med, 29, 2119 - 2124

• An assessment of the construct validity of the SF-12 summary scores across ethnic groups.

  Jenkinson C. et al, (2001), J Public Health Med, 23, 187 - 194

• Development of an endometriosis quality-of-life instrument: The Endometriosis Health Profile-30.

  Jones G. et al, (2001), Obstet Gynecol, 98, 258 - 264

• Can item response theory reduce patient burden when measuring health status in neurological disorders? Results from Rasch analysis of the SF-36 physical functioning scale (PF-10).

  Jenkinson C. et al, (2001), J Neurol Neurosurg Psychiatry, 71, 220 - 224

• Determining minimally important differences for the PDQ-39 Parkinson's disease questionnaire.

  Peto V. et al, (2001), Age Ageing, 30, 299 - 302

• Quality-of-life repercussions and costs of parkinson's disease

  Jenkinson C., (2001), Disease Management and Health Outcomes, 9, 11 - 19

• Chronic pelvic pain in the community--symptoms, investigations, and diagnoses.

  Zondervan KT. et al, (2001), Am J Obstet Gynecol, 184, 1149 - 1155

• Long-term benefits in self-reported health status of nasal continuous positive airway pressure therapy for obstructive sleep apnoea.

  Jenkinson C. et al, (2001), QJM, 94, 95 - 99

• Reduced item set for the amyotrophic lateral sclerosis assessment questionnaire: development and validation of the ALSAQ-5.

  Jenkinson C. and Fitzpatrick R., (2001), J Neurol Neurosurg Psychiatry, 70, 70 - 73

• Guest editorial

  Jenkinson C., (2000), Amyotrophic Lateral Sclerosis, 1, 223 - 224

• Evidence for the validity and reliability of the ALS assessment questionnaire: The ALSAQ-40

  Jenkinson C. et al, (2000), Amyotrophic Lateral Sclerosis, 1, 33 - 40

• The amyotrophic lateral sclerosis assessment questionnaire (ALSAQ-40): tests of data quality, score reliability and response rate in a survey of patients.

  Jenkinson C. et al, (2000), J Neurol Sci, 180, 94 - 100

• The ALS Health Profile Study: quality of life of amyotrophic lateral sclerosis patients and carers in Europe.

  Jenkinson C. et al, (2000), J Neurol, 247, 835 - 840

• The London handicap scale - Reply

  Mant J. et al, (2000), JOURNAL OF NEUROLOGY NEUROSURGERY AND PSYCHIATRY, 69, 406 - 406

• Quality of life in ALS.

  Jenkinson C., (2000), Amyotroph Lateral Scler Other Motor Neuron Disord, 1, 223 - 224

• Self-report quality of life measure for people with schizophrenia: the SQLS.

  Wilkinson G. et al, (2000), Br J Psychiatry, 177, 42 - 46

• The new UK National Statistics Socio-Economic Classification (NS-SEC); investigating social class differences in self-reported health status.

  Chandola T. and Jenkinson C., (2000), J Public Health Med, 22, 182 - 190

• Validating self-rated health in different ethnic groups.

  Chandola T. and Jenkinson C., (2000), Ethn Health, 5, 151 - 159

• The London handicap scale: a re-evaluation of its validity using standard scoring and simple summation.

  Jenkinson C. et al, (2000), J Neurol Neurosurg Psychiatry, 68, 365 - 367

• Randomised prospective parallel trial of therapeutic versus subtherapeutic nasal continuous positive airway pressure on simulated steering performance in patients with obstructive sleep apnoea.

  Hack M. et al, (2000), Thorax, 55, 224 - 231

• Evidence for the validity and reliability of the ALS assessment questionnaire: the ALSAQ-40.

  Jenkinson C. et al, (1999), Amyotroph Lateral Scler Other Motor Neuron Disord, 1, 33 - 40

• Comparison of UK and US methods for weighting and scoring the SF-36 summary measures.

  Jenkinson C., (1999), J Public Health Med, 21, 372 - 376

• Assessing health-related quality-of-life in individuals with haemophilia.

  Miners AH. et al, (1999), Haemophilia, 5, 378 - 385

• Social class differences in morbidity using the new U.K. National Statistics Socio-Economic Classification. Do class differences in employment relations explain class differences in health?

  Chandola T. and Jenkinson C., (1999), Ann N Y Acad Sci, 896, 313 - 315

• The relationship between well-being and support provided by health and social services to caregivers of people with motor neurone disease

  Peters M. et al

Key Publications

• Deep brain stimulation plus best medical therapy versus best medical therapy alone for advanced Parkinson's disease (PD SURG trial): a randomised, open-label trial.

  Williams A. et al, (2010), Lancet Neurol, 9, 581 - 591

• The development and validation of a quality of life measure for the carers of people with Parkinson's disease (the PDQ-Carer).

  Jenkinson C. et al, (2012), Parkinsonism Relat Disord, 18, 483 - 487

• The Stroke Impact Scale: validation in a UK setting and development of a SIS short form and SIS index.

  Jenkinson C. et al, (2013), Stroke, 44, 2532 - 2535

• The Oxford Participation and Activities Questionnaire: study protocol.

  Morley D. et al, (2013), Patient Relat Outcome Meas, 5, 1 - 6

Recent Publications

• Living with breathlessness in chronic heart failure: a qualitative study.

  Walthall H. et al, (2017), J Clin Nurs, 26, 2036 - 2044

• Patient-Reported Outcome Measure for Early Postoperative Recovery Following Lower Limb Arthroplasty: A Systematic Review.

  Strickland LH. et al, (2016), J Arthroplasty, 31, 2933 - 2940

• Spanish version of the Parkinson's Disease Questionnaire-Carer (PDQ-Carer).

  Ferrer-Cascales R. et al, (2016), Health Qual Life Outcomes, 14

• Pretesting an e-based version of the Oxford Participation and Activities Questionnaire (Ox-PAQ)

  Kelly L. et al, (2016), Value in Health, 19, A485 - A485

• Cost-utility analysis of deep brain stimulation surgery plus best medical therapy versus best medical therapy in patients with Parkinson's: Economic evaluation alongside the PD SURG trial.

  McIntosh E. et al, (2016), Mov Disord, 31, 1173 - 1182