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This preliminary phase involved reviewing literature in a range of relevant areas, including disease-specific Patient-Reported Outcome Measures for different long-term conditions, use of PROMs in various settings, and issues and priorities for people with long-term conditions.

The research team have conducted pragmatic reviews of literature in the following areas, of relevance to the project:

Generic and Disease-Specific Patient-reported Outcome Measures

The team examined common outcomes included on PROMs used across all conditions (generic measures) and outcomes included on disease-specific PROMs.

Patient-reported Outcome Measures in Clinical Practice

The team examined research into the use of Patient-Reported Outcome Measures in clinical practice. This included trials on different uses of patient feedback and PROMs in various health and social care settings.

Self-management

The team examined the literature around self-management for people with long-term conditions, especially measures used to evaluate self-management or related concepts (e.g. empowerment, activation) in clinical trials and clinical practice.

Multi-morbidity

The team examined literature on the nature, epidemiology and prognosis of multi-morbid long-term conditions, and service users’ and practitioners’ experiences of multi-morbidity in the context of long-term conditions.

Priorities and Outcomes of Care

The team examined the treatment and care priorities of patients and practitioners with regards to long-term conditions, investigating the literature on the priorities of those with long-term physical health conditions, those with long-term mental health conditions, and those with multi-morbid long-term health conditions.

Living with long-term conditions