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ELSI 2.0 is proud to present the latest live webinar recorded on Thursday 23 November at 1pm (UTC/UK time/2pm CET) with

Dr Karoliina Snell, University of Helsinki, Finland presenting

“Building a national genome centre - citizen and policy perspectives” 



Genomics England

“Identifying and addressing ethics and governance issues in the UK’s 100,000 Genomes Project”

Professor Mike Parker, Director of The Ethox Centre, University of Oxford

Monday 23 January

(Presentation with slides end at 21:00 - then lines opened for questions)

The recording is available for downloading here.


Sharing Genetic Data for individual care : consent & confidentiality

Dr Mark Taylor, University of Sheffield

21st February 2017 at 12.30

Due to an early bug in the system, Dr Mark Taylor’s slides were unable to be saved in conjunction with his presentation, however they are attached for you to review whilst viewing/listening to his presentation.  We are rectifying this concern with Brother prior to our next webinar. Webinar Slides

The 100,000 Genomes Project: Observations from within a Genomic Medicine Centre'

Dr Leigh Jackson, South West Genomic Medicine Centre.

 Wednesday 22 March 2017 13:00 - 14:00 GMT



'Negotiating ethical practice when clinical care depends on big-data research'

Dr Sandi Dheensa, University of  Southampton

Tuesday 18th April 2017 13:00 - 14:00 GMT

Presentation slides are available to download here.

The recording is available for downloading here.


Consent and confidentiality in genetic medicine, does clinical practice need to adapt?

Professor Anneke Lucassen, University of  Southampton

Tuesday 23rd May 2017 13:00 - 14:00 GMT


Webinar available on request - please email Imogen Holbrook at :



Personalised Medicine

From personalised to ‘precision’ medicine

Barbara Prainsack

Tuesday 28 April from 13:00 - 14:00 GMT


Webinar available on request - please email Imogen Holbrook at :

Personalised Medicine: Challenges for health data governance

Mark Taylor

Thursday 18th May 13:00 - 14:00 GMT

The recording is available for downloading here.

The implementation of personalised medicine in the UK

Rob Hastings, Principal, Precision Medicine Catapult, POSTPONED from

Wednesday 15th June 13:00 - 14:00 GMT.  New date available soon.


Patient and interest organisations’ views on personalised medicine

Isabelle Budin Ljosne, Norwegian Institute of Public Health

Wednesday 5 July 13:00 - 14:00 GMT


From precision medicine to ‘All of us’: addressing the needs of underserved populations

All of Us programme

Tuesday 29th August 13:00 - 14:00 GMT



Community Engagement

Psycho-socio-economic challenges on Thalassemic patients: sharing prom peripheral region

Monday 15th May 14:00 Western Indonesian Time (or 8am in the UK)

The Indonesian Thalassemia Team (Purwokerto, Indonesia)  include Dyah Woro Dwi Lestari, Dinar Faiza, Lantip Rujito, Joko Setyono & Abdul Aziz Suparno.

Presentation Slides available here. No recording available - our apologies.


Community engagement with the National Centre for Indigenous Genomics

Professor Emma Kowal, Deakin University, presents

“Community Engagement with the National Centre for Indigenous Genomics”

Date : Tuesday 23rd May at 6pm Melbourne, Australia   (9am in the UK on the same day)

The recording is available for downloading here.


Check the Global timings here.