ELSI 2.0 Webinars
Building a national genome centre - citizen and policy perspectives
Dr Karoliina Snell, University of Helsinki, Finland
Thursday 23 November at 1pm (UTC/UK time/2pm CET)
GENOMICS ENGLAND
IDENTIFYING AND ADDRESSING ETHICS AND GOVERNANCE ISSUES IN THE UK’S 100,000 GENOMES PROJECT
Professor Mike Parker, Director of The Ethox Centre, University of Oxford
Monday 23 January
(Presentation with slides end at 21:00 - then lines opened for questions)
The recording is available for downloading here.
SHARING GENETIC DATA FOR INDIVIDUAL CARE : CONSENT & CONFIDENTIALITY
Dr Mark Taylor, University of Sheffield
21st February 2017 at 12.30
Due to an early bug in the system, Dr Mark Taylor’s slides were unable to be saved in conjunction with his presentation, however they are attached for you to review whilst viewing/listening to his presentation. Webinar Slides
THE 100,000 GENOMES PROJECT: OBSERVATIONS FROM WITHIN A GENOMIC MEDICINE CENTRE
Dr Leigh Jackson, South West Genomic Medicine Centre.
Wednesday 22 March 2017 13:00 - 14:00 GMT
NEGOTIATING ETHICAL PRACTICE WHEN CLINICAL CARE DEPENDS ON BIG-DATA RESEARCH
Dr Sandi Dheensa, University of Southampton
Tuesday 18th April 2017 13:00 - 14:00 GMT
Presentation slides and the recording are available to download.
CONSENT AND CONFIDENTIALITY IN GENETIC MEDICINE, DOES CLINICAL PRACTICE NEED TO ADAPT?
Professor Anneke Lucassen, University of Southampton
Tuesday 23rd May 2017 13:00 - 14:00 GMT
Webinar available on request - please email Imogen Holbrook.
PERSONALISED MEDICINE
FROM PERSONALISED TO ‘PRECISION’ MEDICINE
Professor Barbara Prainsack, King's College London
Tuesday 28 April from 13:00 - 14:00 GMT
Webinar available on request - please email Imogen Holbrook.
PERSONALISED MEDICINE: CHALLENGES FOR HEALTH DATA GOVERNANCE
Dr Mark Taylor, University of Sheffield
Thursday 18th May 13:00 - 14:00 GMT
The recording is available for downloading here.
THE IMPLEMENTATION OF PERSONALISED MEDICINE IN THE UK
Rob Hastings, Principal, Precision Medicine Catapult, POSTPONED from
Wednesday 15th June 13:00 - 14:00 GMT. New date available soon.
PATIENT AND INTEREST ORGANISATIONS’ VIEWS ON PERSONALISED MEDICINE
Isabelle Budin Ljosne, Norwegian Institute of Public Health
Wednesday 5 July 13:00 - 14:00 GMT
FROM PRECISION MEDICINE TO ‘ALL OF US’: ADDRESSING THE NEEDS OF UNDERSERVED POPULATIONS
All of Us programme
Tuesday 29th August 13:00 - 14:00 GMT
COMMUNITY ENGAGEMENT
PSYCHO-SOCIO-ECONOMIC CHALLENGES ON THALASSEMIC PATIENTS: SHARING PROM PERIPHERAL REGION
Monday 15th May 14:00 Western Indonesian Time (or 8am in the UK)
The Indonesian Thalassemia Team (Purwokerto, Indonesia) include Dyah Woro Dwi Lestari, Dinar Faiza, Lantip Rujito, Joko Setyono & Abdul Aziz Suparno.
Presentation Slides available here. No recording available - our apologies.
COMMUNITY ENGAGEMENT WITH THE NATIONAL CENTRE FOR INDIGENOUS GENOMICS
Professor Emma Kowal, Deakin University
Tuesday 23rd May at 6pm Melbourne, Australia (9am in the UK on the same day)
The recording is available for downloading here.
Check the Global timings here.