BioSHaRE is a consortium of leading biobanks and international researchers from all domains of biobanking science. The overall aim of the project is to build upon tools and methods available to achieve solutions for researchers to use pooled data from different cohort and biobank studies.
The mission of BioSHaRE is to ensure the development of harmonized measures and standardized computing infrastructures enabling the effective pooling of data and key measures of life-style, social circumstances and environment, as well as critical sub-components of the phenotypes associated with common complex diseases.
This is in order to obtain the very large sample sizes needed to investigate current questions in multifactorial diseases, notably on gene-environment interactions. This aim will be achieved through the development of harmonization and standardization tools, implementation of these tools and demonstration of their applicability.
HeLEX provides the ELSI (Ethical, Legal and Social Implications) research for the BioSHaRe project.
Liam Curren, former HeLEX Researcher in Law, worked on the project.