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Biobanking and Public Engagement

lunchtime seminar - 9 Dec 2011 John Radcliffe Hospital, George Pickering Centre Seminar Room 2b, from Dec 09, 2011 11:45 AM to Dec 09, 2011 01:45 PM

As part of a series of meetings supporting development of a public engagement strategy in Oxford, we are delighted to host two leaders in the field: Michael M. Burgess and Sarah Cunningham-Burley

**CANCELLED/POSTPONED** From Practice to Policy: Framing Recommendations to Support Collaboration

Richard Doll building, lecture theatre, Old Road Campus, Headington, Oxford, from Nov 30, 2011 01:00 PM to Nov 30, 2011 02:00 PM

Have your say. Panel session, with input from earlier sessions and participants. NOTE: THIS SESSION HAS BEEN CANCELLED/POSTPONED DUE TO THE STRIKE ACTION. PLEASE CHECK BACK HERE AGAIN FOR UPDATES ON POSSIBLE RESCHEDULING.

Taking care of business - relationships with industry

Richard Doll building, lecture theatre, Old Road Campus, Headington, Oxford, from Nov 23, 2011 12:00 PM to Nov 23, 2011 01:00 PM

(*** Please note different time 12-1pm ***) Presented by Dr Maxine Allen, Manager, Business Development Office, Medical Sciences Division

 How to survive your co-authors

Richard Doll building, lecture theatre, Old Road Campus, Headington, Oxford, from Nov 16, 2011 01:00 PM to Nov 16, 2011 02:00 PM

Presented by Tim Albert, author of "Winning the publications game".

THE GOVERNANCE OF BIOBANKS: FROM PROPERTY TO DATA PROTECTION

Teaching Room B, Rosemary Rue Building, Old Road Campus, Headington, Oxford, from Nov 11, 2011 10:00 AM to Nov 11, 2011 11:00 AM

Presented by MATTEO MACILOTTI, TRENTO LAWTECH RESEARCH GROUP, UNIVERSITY OF TRENTO

Making Trials Work in Developing Countries

Richard Doll building, lecture theatre, Old Road Campus, Headington, Oxford, from Nov 09, 2011 01:00 PM to Nov 09, 2011 02:00 PM

Dr Trudie Lang, Head of the Global Health Clinical Trial Research Programme

**CANCELLED** Making it up as you go along: how to maintain collaboration in large informal research networks

Richard Doll building, lecture theatre, Old Road Campus, Headington, Oxford, from Nov 02, 2011 01:00 PM to Nov 02, 2011 02:00 PM

Prof Mark McCarthy, Robert Turner Professor of Diabetic Medicine, Oxford Centre for Diabetes, Endocrinology & Metabolism

Pre-Nups. Why they are important in research and how to get them in place

Richard Doll building, lecture theatre, Old Road Campus, Headington, Oxford, from Oct 26, 2011 12:00 PM to Oct 26, 2011 01:00 PM

Dr Richard Liwicki, Deputy Director Research Services, Head of the Medical Sciences Office, University of Oxford. (***note different time 12-1pm***

The Structure of Good Collaboration: using governance mechanisms to your advantage

 Richard Doll building, lecture theatre, Old Road Campus, Headington, Oxford, from Oct 19, 2011 01:00 PM to Oct 19, 2011 02:00 PM

Dr Jane Kaye, Director, HeLEX Centre for Health Law and Emerging Technologies

Ethics in emerging forms of global health research collaboration

Richard Doll building, lecture theatre, Old Road Campus, Headington, Oxford, from Oct 12, 2011 01:00 PM to Oct 12, 2011 02:00 PM

Professor Mike Parker, Professor of Bioethics and Director of the Ethox Centre; Dr Kirk Rockett, Research Manager MalariaGEN

Adequacy of Data Protection in Total Hospital Information System (THIS); The Malaysian Story by Noriswadi Ismail

Old Road Campus, Rosemary Rue Building, Teaching Room B - ground floor, off the lounge near the canteen, from Aug 10, 2011 01:00 PM to Aug 10, 2011 02:00 PM

In this presentation, Noris analyses the application of Malaysian Personal Data Protection Act (PDPA) 2010's seven data protection principles within the Malaysian Hospitals' Total Hospital Information System (THIS). He will provide some key observations on the PDPA and how it may enhance the required level of adequacy and trust in THIS.

 Person, Body, Samples... Bioethical Considerations - by Mária Šuleková

from Aug 03, 2011 01:00 PM to Aug 03, 2011 02:00 PM

The concepts of the person and the human body have an important impact on the ethical reflection about the values and principles regarding new questions raised in medicine and in biomedical research. Which implications do these concepts have to the thinking about human tissue issues?

Mapping Legal Barriers to Open Sharing - by Diane Cabell

Old Road Campus, Rosemary Rue Building, Seminar Room 1a (Ground floor), from Jul 27, 2011 01:00 PM to Jul 27, 2011 02:00 PM

“Most scientific disciplines are finding the data deluge to be extremely challenging, and tremendous opportunities can be realized if we can better organize and access the data” Editorial. Dealing with data, Science (2011) Vol. 331, 692-693.

From physical integrity to the free use of the body: reconstructing a Basic Human Right - by Brunello Stanciolli

Old Road Campus, Rosemary Rue Building, Seminar room 1a (Ground Floor), from Jul 20, 2011 01:00 PM to Jul 20, 2011 02:00 PM

"I argue that the idea of physical integrity is an anachronism that makes explicit the strong Christian view of the human body...

Case Law Update by Liam Curren, HeLEX

Old Road Campus, Rosemary Rue Building, Room 205, from Jul 06, 2011 01:00 PM to Jul 06, 2011 02:00 PM

Liam will lead a discussion of two important recent cases...

Prof. Yorick Wilks - Caring Computers: Artificial Health Companions

Rosemary Rue Building, Old Road Campus, University of Oxford, in Teaching Room B, from Jul 01, 2011 01:00 PM to Jul 01, 2011 02:00 PM

Note: This seminar has been rescheduled for around mid July. The exact date will be posted here soon.

Elisabeth Harding - Exploring the Concept of Informed Awareness

Rosemary Rue Building, Old Road Campus, University of Oxford, in Teaching Room B, from Jun 24, 2011 01:00 PM to Jun 24, 2011 02:00 PM

The terms confidentiality, privacy, and consent cause confusion. What these terms are assumed to mean, and what that actually mean are quite different.

An ‘Information Revolution’? Exploring internet use and patient autonomy in HIV treatment and care Fadhila Mazanderani

Rosemary Rue Building, Old Road Campus, University of Oxford, in Teaching Room B, from Jun 17, 2011 01:00 PM to Jun 17, 2011 02:00 PM

Dissatisfaction over the provision of information to patients has been consistently documented as a major source of frustration in healthcare settings. While concerns over the most appropriate way to disseminate information to patients are longstanding, questions regarding the distribution of information have increasingly been redefined in relation to information technologies. Consequently, these technologies and the internet in particular, are frequently positioned in healthcare policy and associated initiatives, such as the recent Department of Health consultation on proposals ‘An Information Revolution’, as primary mechanisms for improving patient care.

Roy Nyberg - Emergence of Mobile Technology in Health Care

Rosemary Rue Building, Old Road Campus, University of Oxford, in Teaching Room B, from Jun 10, 2011 01:00 PM to Jun 10, 2011 02:00 PM

Health care and its processes are one of the more carefully defined and regulated areas of social and organisational activity. A central feature of formal organisations tends to be a keen interest in maintaining adopted practices for efficiency purposes, making them resist the adoption of new innovations. Yet even in health care, new innovations, e.g. new technology, have been and are being adopted. Within sociology, theories on organisational change and institutional innovation have sought to explain this set of phenomena by looking at how social actors, whether individuals or organisations, have an influence on their peers.

Prof. Matthew Steven Carlos - How to Harm: Health, Technology, and Troublesome Ethics

Rosemary Rue Building, Old Road Campus, University of Oxford, in Teaching Room B, from Jun 03, 2011 01:00 PM to Jun 03, 2011 02:00 PM

Matthew Steven Carlos is Assistant Director and Professor at the European University for Interdisciplinary Studies, Executive Director of the Sobota Foundation, Associate at the London Architecture, Strategy, and Design company Zero Zero, and a HeLEX Research Associate who together with Joanne Munt organised this seminar series. Matthew's general interest is Philosophy of non-normative environments - where facts are uncertain, values in dispute, stakes high, and decisions urgent. Within this general frame, he attends to interconnected issues of complexity in Ethics, Knowledge, Health, and Civic Life. A Fellow of the Royal Society of Arts, over the last fifteen years, Matthew has founded two institutes, four companies, and a foundation, as well as participated in the start-up of several social-benefit organisations, including One Laptop Per Child. Matthew has advised national and regional governments, international coalition projects, private sector companies, and non-governmental organisations around the world. All welcome.

How Social Technologies Change Personal Identity and Alter Care  - Prof Hendrik Speck

Rosemary Rue Building, Old Road Campus, University of Oxford, in Teaching Room B, from May 27, 2011 01:00 PM to May 27, 2011 02:00 PM

Privacy, Consent, and Identity are some of the most discussed and hotly contested issues with regards to Emerging Technologies. In the arena of Health, these concerns riddle biometrics, bioinformatics, and bio-banking - taking particular prominence in Ethical and Legislative decision-making. This seminar steps away from the usual perspectives on these topics, instead reframing the debate in the wider information culture. We will compare finger prints and genetic sequences to Tweets, Photo Tags, and Facebook posts in describing individual identity; examine the influence of entertainment technologies in determining selfhood; dispute the Innocence of Data; and question what sort of Care is possible and appropriate in an information ecology where average people give away intimate information about themselves everyday for little or no personal benefit.

Prodromos Tsiavos - From Creative Commons to Consent Commons:Licensing Schemes and Technological Arrangements for Sharing Personal and Sensitive Data

Rosemary Rue Building, Old Road Campus, University of Oxford, in Teaching Room B, from May 20, 2011 01:00 PM to May 20, 2011 02:00 PM

Open Public Licences have been successfully used for the sharing of source code, content and data for at least two decades. Such licensing arrangements, often accompanied by other legal instruments, such as contributors' agreements, and by information systems, such as Concurrent Versions Systems (CVS), source and data forges or open repositories, have mainly supported an alternative Intellectual Property Rights (IPR) management approach that aims at producing new forms of value for individuals, organisations and communities. However, as the importance of managing and regulating open data increases, regulators and data owners are faced with the challenge of managing not just IPR but also personal data and in some cases bio-material. In addition, the rise of Vendor Management Systems (VRM) and personal data stores has emphasised the need to increase the control of the individual over her personal information. In that sense, open data becomes a balancing exercise between the need to share data and retain control over them while remaining within the boundaries of regulations often designed for a different technological environment. In such a context, the provision of tools, legal and technical for the management of consent and its revocation becomes crucial for a fair and efficient sharing of data and bio-material.