Dr Andelka M. Phillips is the Ussher Assistant Professor in Information Technology Law at Trinity College Dublin and she is also a Research Associate with the University of Oxford's HeLEX Centre. Her recent research has focussed on the regulation of direct-to-consumer genetic tests, examining the industry's use of wrap contracts (browsewrap and clickwrap). She is currently working on a book, entitled Buying Your Self on the Internet: Wrap Contracts and Personal Genomics to be published by Edinburgh University Press as part of its Future Law series. She is also co-editing with Professor Jonathan Herring and Dr Thana Campos Philosophical Foundations of Medical Law, which will be published as part of Oxford University Press' Philosophical Foundations of Law series.
Her research interests are in Information Technology Law and Medical and Health Law, specifically the use, storage, and treatment of sequenced genomic data. Her current and on-going research is concerned with a variety of issues, including: wrap contracts, the regulation of emerging and disruptive technologies, consumer protection, surveillance technologies, artificial intelligence and regulation of robotics, synthetic biology, cyber security, and responsible innovation. She is also particularly interested in the societal impact of new and emerging technologies.
Andelka’s doctoral research examined the use of online wrap contracts (clickwrap and browsewrap) and the protection of consumers’ rights in their genetic information in the context of direct-to-consumer (DTC) genetic testing.
Andelka has recently released some of her data on the Direct-to-Consumer Genetic Testing industry publicly. The most current version is Version 1.3 and this will be updated again in the future, but all versions of this dataset can be cited using this DOI 10.5281/zenodo.1175799.
Trinity College Dublin Law School Profile link https://www.tcd.ie/research/profiles/?profile=phillian
Personal website : http://www.andelkamphillips.com
Andelka is also Convenor of Trinity College Dublin Law School's Technology, Law and Society Research Group. https://www.tcd.ie/law/research/technology-and-law
1. Andelka M. Phillips, 'Data on Direct-to-Consumer Genetic Testing and DNA testing companies’ (2018) Version 1.3 (data set) Zenodo http://doi.org/10.5281/zenodo.1183565
Andelka M Phillips, ‘Reading the Fine Print When Buying Your Genetic Self Online: Direct-to-Consumer Genetic Testing Terms and Conditions’ (2017) New Genetics and Society 36(3) 273-295 http://dx.doi.org/10.1080/14636778.2017.1352468
Andelka M Phillips and I S Mian, ‘Governance and of Future Spaces: A Discussion of Some Issues Raised by the Possibilities of Human-Machine Mergers’, discussion paper for Data For Policy Government by Algorithm? Conference, London, September 6th to 7th, 2017. Data_for_Policy_2017_paper_53 – link to conference website
L Kalokairinou, HC Howard, et al, AM Phillips,14 ‘Legislation of direct-to-consumer genetic testing in Europe: a fragmented regulatory landscape’ J Community Genet (2017). DOI 10.1007-s12687-017-0344-2-2
- Andelka M. Phillips, Buying Your Self on the Internet: Wrap Contracts and Personal Genomics (Edinburgh University Press, forthcoming 2019) – this is part of Edinburgh University Press’ Future Law series
- Jonathan Herring, Thana Campos, and Andelka M. Phillips, (eds), Philosophical Foundations of Medical Law (Oxford University Press, forthcoming 2018/ 2019) – this is part of Oxford University Press’ Philosophical Foundations of Law series.
- Andelka M. Phillips, ‘The Age of Personalised Medicine – From Patients to Consumers: The Digital Environment, Clickwrap Contracts, and Implications for Autonomy’ in Jonathan Herring, Thana Campos, and Andelka M. Phillips, (eds), Philosophical Foundations of Medical Law (Oxford University Press, forthcoming 2018/ 2019)
- Andelka M. Phillips, ‘Märkte für genetische Information’, 2016 – this was an invited article, which was translated into German (http://www.gen-ethisches-netzwerk.de/gid/237)
- Jane Kaye, Jessica Bell, Colin Mitchell, Andelka M. Phillips, and Sonja Myhre, ‘Registries Governance Guidance Toolkit’ (version 2, 9 June 2016) (https://www.fhi.no/globalassets/dokumenterfiler/eregistries/eregistries-lp-3-eregistries-governance-guidance-toolkit_06.08.16.pdf)
- Andelka M. Phillips, ‘Will My Genes Really Help Me Fit Into Those Jeans? Personal Genomics and Wrap Contracts’ – this is an invited chapter in B Schafer, L Edwards, and E Harbinja (eds), Law Technology and Culture: a Primer (Edinburgh University Press forthcoming 2017-18).
- Andelka M. Phillips, Cyber Risk and Connected/Autonomous Vehicles Workshop – A Summary Report (report for Cyber Security Oxford, workshop held on 22nd February 2016). This report was made available to the workshop participants, but is not available to the public.
- Andelka M. Phillips, I.S. Mian, and Jan Charbonneau, ‘Living in a Panopticon City: the Biological-Geographic-Economic-Social-Behavioural-Physical complex -- people and places under dynamic surveillance’ – paper accepted for Surveillance: Power, Performance & Trust (7th Biannual Surveillance and Society Conference).
- Andelka M. Phillips, 'Take an online DNA test and you could be revealing far more than you realise' (12th January 2016) The Conversation (https://theconversation.com/take-an-online-dna-test-and-you-could-be-revealing-far-more-than-you-realise-52734). Over 17,000 readers as of April 2017.
- Andelka M. Phillips, 'Direct-to-consumer genetic tests – more than just a question of health' (December 2015) BioNews (http://www.bionews.org.uk/page_596662.asp).
- Andelka M. Phillips, and Jan Charbonneau, 'From the Lab to the Market' (2015) GeneWatch 28-3 Oct-Dec 2015 (invited piece) (http://www.councilforresponsiblegenetics.org/GeneWatch/GeneWatchPage.aspx?pageId=566).
- Andelka M. Phillips, ‘Only a Click Away – DTC Genetics for Ancestry, Health, Love… and More: A View of the Business and Regulatory Landscape’ (2016) 8 Applied & Translational Genomics 16-22. This was an invited article for a special issue of the journal, but it was also peer reviewed. – this is the sixth most downloaded article from the Applied & Translational Genomics Journal in the past 90 days.
- Andelka M. Phillips, ‘Think Before You Click’ republished as part of the American Bar Association’s “The Best of ABA Sections” in its GPSolo magazine (July/August issue 2015). (http://www.americanbar.org/publications/gp_solo/2015/july-august/science_and_technology_law_think_you_click_ordering_genetic_test_online.html)
- Andelka M. Phillips, ‘Genomic Privacy and Direct-to-Consumer Genetics – Big Consumer Genetic Data – What’s in that Contract?’ (presented at GenoPri’15 (The 2nd Workshop on Genome Privacy and Security) and published as part of IEEE Conference Proceedings 2015) (this was also peer reviewed by an interdisciplinary panel) (http://www.genopri.org/uploads/3/9/9/9/39999711/9933a060.pdf).
- Andelka M. Phillips, ‘Think Before You Click – Ordering a Genetic Test Online’ (Winter 2015) The SciTech Lawyer 11(2). (http://www.americanbar.org/publications/scitech_lawyer/2015/winter/think_before_you_click_ordering_genetic_test_online.html)
- Andelka M. Phillips, ‘Direct-to-Consumer Genetic Testing – A Brief Introduction’ (August 2014) SCL. (http://www.scl.org/site.aspx?i=ed38110).
- Andelka M. Phillips, ‘A Legal Review of Legislation, Regulation, and Guidelines for the Harmonised Reproductive Health Registries Initiative (hRHR) (http://www.fhi.no/dokumenter/4061b1267b.pdf)
- Professor Jane Kaye and Andelka M. Phillips, Background Briefing for EAGDA, (Wellcome Trust, 2012).