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EARLY STAGE RESEARCHERS' WORKSHOP (St Cross College, Oxford, from Nov 17, 2014 09:30 AM to Nov 21, 2014 04:30 PM)
A COST ACTION (CHIP ME) Funded workshop for 11 international delegates run by the HeLEX team of staff for a week of intensive planning. The aim of this workshop is to plan the programme of ESR activities for the COST Action and to identify the activities and tools to support this action.

  " Ethical and Social Issues in Big Data Research" with Professor Ralph Schroeder (WTHGB, from Mar 13, 2014 12:00 PM to Mar 13, 2014 01:00 PM)
12 - 1.00 pm in Seminar Room A, Wellcome Trust & Human Genetics Building, Old Road Campus, Headington, Oxford

  "How to Cope with the Unexpected - Incidental Findings" (Seminar room A, Wellcome Trust & Human Genetics Building, Old Road Campus, from Feb 06, 2014 12:30 PM to Feb 06, 2014 01:30 PM)
Dr Jane Kaye, Director of HeLEX, Centre for Health Law and Emerging Technologies, University of Oxford presents the third in the Talking Law and Ethics Seminar Series : All About Data

  Talking Law and Ethics Seminar Series : All About Data (Seminar room A, Wellcome Trust & Human Genetics Building, from Jan 30, 2014 12:30 PM to Jan 30, 2014 01:30 PM)
"You agreed to this, but what if you change your mind? - Dynamic Consent"

 Me Medicine vs. We Medicine - Evaluating Personalised Medicine (Seminar room A, Wellcome Trust & Human Genetics Building, Old Road Campus, from Jan 23, 2014 12:30 PM to Jan 23, 2014 01:30 PM)
Prof. Donna Dickenson, Emeritus Professor of Medical Ethics and Humanities at the University of London and honorary senior research fellow at the Centre for Ethics in Medicine, University of Bristol

 Evolution or Revolution? The Biomaterials Property Debate and Changing Ethical, Legal, and Social Norms (Geneva, Switzerland, from Jan 16, 2014 12:00 AM to Jan 17, 2014 12:00 AM)
16th-17th January 2014, Fondation Brocher Call for Participants Deadline to register : 18th November

 BBMRI-ERIC Inauguration Ceremony, the second International Biobanking Summit & the BBMRI-LPC Forum Meeting (Graz, Austria, from Sep 16, 2013 03:20 PM to Sep 18, 2013 03:20 PM)
 
  Meeting on Human Genomics and Personalized Medicine (Stockholm, Sweden, from Jun 17, 2013 09:00 AM to Jun 21, 2013 05:00 PM)
Keystone Symposia is pleased to announce its conference on “Human Genomics and Personalized Medicine,” taking place June 17-21, 2013 at Hotel Clarion Sign in Stockholm, Sweden. The abstract and scholarship deadline for this meeting is at midnight US Mountain Time on Feb 20, 2013.

  Medical Law & Ethics Discussion Group Seminar Series (Oxford Law Faculty Law Faculty SCR, from May 08, 2013 12:00 AM to May 25, 2013 12:30 PM)
Seminar Series for May 2013

 Direct-to-Consumer (DTC) Personal Genome Testing and Consumers' Rights - What Are You Signing Up to When You Purchase a DTC Genetic Test? (Massey Room, Balliol College, from Mar 07, 2013 01:05 PM to Mar 07, 2013 01:05 PM)
Part of OxPILS' Emerging Issues in Information Law Seminar Series Hilary Term 2013. All seminars 4:30-6pm(refreshments follow).

  The Challenge of Data Protection and Openness: Commonalities and Contrasts Across the European Union (Massey Room, Balliol College, from Feb 28, 2013 01:05 PM to Feb 28, 2013 01:05 PM)
Part of OxPILS' Emerging Issues in Information Law Seminar Series Hilary Term 2013. All seminars 4:30-6pm(refreshments follow).

  Medical Law & Ethics Discussion Group Seminar Series (Oxford Law Faculty, SCR, from Feb 22, 2013 02:00 PM to Feb 22, 2013 05:00 PM)
Panel Event on Direct-to-Consumer Genetic Testing

  Drones and Privacy (Massey Room, Balliol College, from Feb 21, 2013 01:05 PM to Feb 21, 2013 01:05 PM)
Part of OxPILS' Emerging Issues in Information Law Seminar Series Hilary Term 2013. All seminars 4:30-6pm(refreshments follow).

  "Transforming Global Governance of Research and Development for Health Products" by Steven Hoffman (Teaching Room A, Rosemary Rue Building, Old Road Campus, Headington, Oxford OX3 7LF, from Dec 07, 2012 12:30 PM to Dec 07, 2012 01:30 PM)
States are currently debating the substance and form of an international agreement to improve the financing and coordination of research and development (R&D) for health products that meet the needs of developing countries. In addition to considering the content of any possible legal or political agreement, states must reflect on the range of implementation mechanisms available to bring any agreement into effect.

  Research Network Christmas Debate: Do We Need Public Involvement in Research? (Robert Turner Lecture Theatre OCDEM, from Dec 06, 2012 01:00 PM to Dec 06, 2012 02:00 PM)
 
  "Open public access to trial data: changing the paradigm of clinical research" by Karmela Krleža-Jerić (Teaching Room A, Rosemary Rue Building, Old Road Campus, Headington, Oxford OX3 7LF, from Nov 26, 2012 02:30 PM to Nov 26, 2012 04:00 PM)
Broad sharing of research data is expected to accelerate research, foster its integrity and increase accountability. Although clinical trials research has been slow to adopt the culture of data transparency, there is a growing tendency for sharing of research data by all involved stakeholders, encouraged by the opportunities offered by the Internet and electronic record keeping.

  Did the English legal system fail Tony Nicklinson? (Law Faculty SCR, Oxford, from Nov 16, 2012 05:00 PM to Nov 16, 2012 06:00 PM)
You are warmly invited to the Med Law & Ethics Discussion Group's inaugural panel discussion on 'locked-in' sufferer Tony Nicklinson's right to die appeal, and the subsequent court decision.

  International Biobanking Summit: Future Directions (Uppsala, Sweden, from Sep 19, 2012 09:00 AM to Sep 19, 2012 05:00 PM)
"Given the rapid changes in technology driving the global research environment, it is time to re-evaluate current biobanking policies and protocols, especially those regarding harmonization, datasharing, international collaborations, and, clinical applications. Through a plenary session format, the International Biobanking Summit will provide researchers, biobankers and policy makers with a stake in planning the international route forward!"

  Biobanking and Public Engagement - lunchtime seminar - 9 Dec 2011 (John Radcliffe Hospital, George Pickering Centre Seminar Room 2b, from Dec 09, 2011 11:45 AM to Dec 09, 2011 01:45 PM)
As part of a series of meetings supporting development of a public engagement strategy in Oxford, we are delighted to host two leaders in the field: Michael M. Burgess and Sarah Cunningham-Burley.

  **CANCELLED/POSTPONED** From Practice to Policy: Framing Recommendations to Support Collaboration (Richard Doll building, lecture theatre, Old Road Campus, Headington, Oxford, from Nov 30, 2011 01:00 PM to Nov 30, 2011 02:00 PM)
Have your say. Panel session, with input from earlier sessions and participants. NOTE: THIS SESSION HAS BEEN CANCELLED/POSTPONED DUE TO THE STRIKE ACTION. PLEASE CHECK BACK HERE AGAIN FOR UPDATES ON POSSIBLE RESCHEDULING.

Taking care of business - relationships with industry (Richard Doll building, lecture theatre, Old Road Campus, Headington, Oxford, from Nov 23, 2011 12:00 PM to Nov 23, 2011 01:00 PM)
(*** Please note different time 12-1pm ***) Presented by Dr Maxine Allen, Manager, Business Development Office, Medical Sciences Division

How to survive your co-authors (Richard Doll building, lecture theatre, Old Road Campus, Headington, Oxford, from Nov 16, 2011 01:00 PM to Nov 16, 2011 02:00 PM)
Presented by Tim Albert, author of "Winning the publications game".

THE GOVERNANCE OF BIOBANKS: FROM PROPERTY TO DATA PROTECTION (Teaching Room B, Rosemary Rue Building, Old Road Campus, Headington, Oxford, from Nov 11, 2011 10:00 AM to Nov 11, 2011 11:00 AM)
Presented by MATTEO MACILOTTI, TRENTO LAWTECH RESEARCH GROUP, UNIVERSITY OF TRENTO

Making Trials Work in Developing Countries (Richard Doll building, lecture theatre, Old Road Campus, Headington, Oxford, from Nov 09, 2011 01:00 PM to Nov 09, 2011 02:00 PM)
Dr Trudie Lang, Head of the Global Health Clinical Trial Research Programme

  **CANCELLED** Making it up as you go along: how to maintain collaboration in large informal research networks (Richard Doll building, lecture theatre, Old Road Campus, Headington, Oxford, from Nov 02, 2011 01:00 PM to Nov 02, 2011 02:00 PM)
Prof Mark McCarthy, Robert Turner Professor of Diabetic Medicine, Oxford Centre for Diabetes, Endocrinology & Metabolism

  Pre-Nups. Why they are important in research and how to get them in place (Richard Doll building, lecture theatre, Old Road Campus, Headington, Oxford, from Oct 26, 2011 12:00 PM to Oct 26, 2011 01:00 PM)
Dr Richard Liwicki, Deputy Director Research Services, Head of the Medical Sciences Office, University of Oxford. (***note different time 12-1pm***)

  The Structure of Good Collaboration: using governance mechanisms to your advantage (Richard Doll building, lecture theatre, Old Road Campus, Headington, Oxford, from Oct 19, 2011 01:00 PM to Oct 19, 2011 02:00 PM)
Dr Jane Kaye, Director, HeLEX Centre for Health Law and Emerging Technologies

  Ethics in emerging forms of global health research collaboration (Richard Doll building, lecture theatre, Old Road Campus, Headington, Oxford, from Oct 12, 2011 01:00 PM to Oct 12, 2011 02:00 PM)
Professor Mike Parker, Professor of Bioethics and Director of the Ethox Centre; Dr Kirk Rockett, Research Manager MalariaGEN

  Adequacy of Data Protection in Total Hospital Information System (THIS); The Malaysian Story - by Noriswadi Ismail (Old Road Campus, Rosemary Rue Building, Teaching Room B (ground floor, off the lounge near the canteen), from Aug 10, 2011 01:00 PM to Aug 10, 2011 02:00 PM)
In this presentation, Noris analyses the application of Malaysian Personal Data Protection Act (PDPA) 2010's seven data protection principles within the Malaysian Hospitals' Total Hospital Information System (THIS). He will provide some key observations on the PDPA and how it may enhance the required level of adequacy and trust in THIS.

  Person, Body, Samples... Bioethical Considerations - by Mária Šuleková (from Aug 03, 2011 01:00 PM to Aug 03, 2011 02:00 PM)
The concepts of the person and the human body have an important impact on the ethical reflection about the values and principles regarding new questions raised in medicine and in biomedical research. Which implications do these concepts have to the thinking about human tissue issues?

  Mapping Legal Barriers to Open Sharing - by Diane Cabell (Old Road Campus, Rosemary Rue Building, Seminar Room 1a (Ground floor), from Jul 27, 2011 01:00 PM to Jul 27, 2011 02:00 PM)
“Most scientific disciplines are finding the data deluge to be extremely challenging, and tremendous opportunities can be realized if we can better organize and access the data” Editorial. Dealing with data, Science (2011) Vol. 331, 692-693.

  From physical integrity to the free use of the body: reconstructing a Basic Human Right - by Brunello Stanciolli (Old Road Campus, Rosemary Rue Building, Seminar room 1a (Ground Floor), from Jul 20, 2011 01:00 PM to Jul 20, 2011 02:00 PM)
"I argue that the idea of physical integrity is an anachronism that makes explicit the strong Christian view of the human body...

  Case Law Update by Liam Curren, HeLEX (Old Road Campus, Rosemary Rue Building, Room 205, from Jul 06, 2011 01:00 PM to Jul 06, 2011 02:00 PM)
Liam will lead a discussion of two important recent cases...

  Prof. Yorick Wilks - Caring Computers: Artificial Health Companions (Rosemary Rue Building, Old Road Campus, University of Oxford, in Teaching Room B, from Jul 01, 2011 01:00 PM to Jul 01, 2011 02:00 PM)
Note: This seminar has been rescheduled for around mid July. The exact date will be posted here soon.

  Elisabeth Harding - Exploring the Concept of Informed Awareness (Rosemary Rue Building, Old Road Campus, University of Oxford, in Teaching Room B, from Jun 24, 2011 01:00 PM to Jun 24, 2011 02:00 PM)
The terms confidentiality, privacy, and consent cause confusion. What these terms are assumed to mean, and what that actually mean are quite different.

  Fadhila Mazanderani - An ‘Information Revolution’? Exploring internet use and patient autonomy in HIV treatment and care (Rosemary Rue Building, Old Road Campus, University of Oxford, in Teaching Room B, from Jun 17, 2011 01:00 PM to Jun 17, 2011 02:00 PM)
Dissatisfaction over the provision of information to patients has been consistently documented as a major source of frustration in healthcare settings. While concerns over the most appropriate way to disseminate information to patients are longstanding, questions regarding the distribution of information have increasingly been redefined in relation to information technologies. Consequently, these technologies and the internet in particular, are frequently positioned in healthcare policy and associated initiatives, such as the recent Department of Health consultation on proposals ‘An Information Revolution’, as primary mechanisms for improving patient care.

  Roy Nyberg - Emergence of Mobile Technology in Health Care (Rosemary Rue Building, Old Road Campus, University of Oxford, in Teaching Room B, from Jun 10, 2011 01:00 PM to Jun 10, 2011 02:00 PM)
Health care and its processes are one of the more carefully defined and regulated areas of social and organisational activity. A central feature of formal organisations tends to be a keen interest in maintaining adopted practices for efficiency purposes, making them resist the adoption of new innovations. Yet even in health care, new innovations, e.g. new technology, have been and are being adopted. Within sociology, theories on organisational change and institutional innovation have sought to explain this set of phenomena by looking at how social actors, whether individuals or organisations, have an influence on their peers.
 
Prof. Matthew Steven Carlos - How to Harm: Health, Technology, and Troublesome Ethics (Rosemary Rue Building, Old Road Campus, University of Oxford, in Teaching Room B, from Jun 03, 2011 01:00 PM to Jun 03, 2011 02:00 PM)
Matthew Steven Carlos is Assistant Director and Professor at the European University for Interdisciplinary Studies, Executive Director of the Sobota Foundation, Associate at the London Architecture, Strategy, and Design company Zero Zero, and a HeLEX Research Associate who together with Joanne Munt organised this seminar series. Matthew's general interest is Philosophy of non-normative environments - where facts are uncertain, values in dispute, stakes high, and decisions urgent. Within this general frame, he attends to interconnected issues of complexity in Ethics, Knowledge, Health, and Civic Life. A Fellow of the Royal Society of Arts, over the last fifteen years, Matthew has founded two institutes, four companies, and a foundation, as well as participated in the start-up of several social-benefit organisations, including One Laptop Per Child. Matthew has advised national and regional governments, international coalition projects, private sector companies, and non-governmental organisations around the world. All welcome.

  Prof Hendrik Speck - How Social Technologies Change Personal Identity and Alter Care (Rosemary Rue Building, Old Road Campus, University of Oxford, in Teaching Room B, from May 27, 2011 01:00 PM to May 27, 2011 02:00 PM)
Privacy, Consent, and Identity are some of the most discussed and hotly contested issues with regards to Emerging Technologies. In the arena of Health, these concerns riddle biometrics, bioinformatics, and bio-banking - taking particular prominence in Ethical and Legislative decision-making. This seminar steps away from the usual perspectives on these topics, instead reframing the debate in the wider information culture. We will compare finger prints and genetic sequences to Tweets, Photo Tags, and Facebook posts in describing individual identity; examine the influence of entertainment technologies in determining selfhood; dispute the Innocence of Data; and question what sort of Care is possible and appropriate in an information ecology where average people give away intimate information about themselves everyday for little or no personal benefit.

  Prodromos Tsiavos - From Creative Commons to Consent Commons:Licensing Schemes and Technological Arrangements for Sharing Personal and Sensitive Data (Rosemary Rue Building, Old Road Campus, University of Oxford, in Teaching Room B, from May 20, 2011 01:00 PM to May 20, 2011 02:00 PM)
Open Public Licences have been successfully used for the sharing of source code, content and data for at least two decades. Such licensing arrangements, often accompanied by other legal instruments, such as contributors' agreements, and by information systems, such as Concurrent Versions Systems (CVS), source and data forges or open repositories, have mainly supported an alternative Intellectual Property Rights (IPR) management approach that aims at producing new forms of value for individuals, organisations and communities. However, as the importance of managing and regulating open data increases, regulators and data owners are faced with the challenge of managing not just IPR but also personal data and in some cases bio-material. In addition, the rise of Vendor Management Systems (VRM) and personal data stores has emphasised the need to increase the control of the individual over her personal information. In that sense, open data becomes a balancing exercise between the need to share data and retain control over them while remaining within the boundaries of regulations often designed for a different technological environment. In such a context, the provision of tools, legal and technical for the management of consent and its revocation becomes crucial for a fair and efficient sharing of data and bio-material.