Centre for Health, Law and Emerging Technologies (HeLEX)
Established in 2009
13 international research projects and collaborations
Satellite Workshop ELSI 2.0 & EuCelLEX June 14 2016 Edinburgh
Translational in Healthcare - Exploring the Impact of Emerging Technologies 23-25 June 2015
HeLEX specialises in investigating the relationships between law, ethics, and practice in the area of emerging technologies in health.
The Centre specialises in investigating the relationships between law, ethics, and practice in the area of emerging technologies in health, and honing those relationships to facilitate effective translational outcomes. We investigate areas where new technologies are having a significant impact, such as the use of next generation sequencing technologies in the clinic and big data approaches in research. To address these complex issues we carry out interdisciplinary research drawing on tools from law, philosophy and the social sciences with the aim of improving or guiding evolving practice.
Research at HeLEX increases understanding of how the use and impact of innovative technologies in health can be accommodated within existing legal and governance frameworks, and the extent to which such frameworks may need to evolve. Our research is embedded in scientific practice ranging from whole genome sequencing to stem cell development and biobanking. We specialise in practical solutions, developing best practice and new forms of project governance by being integrated in cutting-edge scientific projects from conception to dissemination. Our advice is based upon evidence-based research, academic scholarship, ethical and legal analysis and experience and understanding of emerging trends in medical research. We use this research and knowledge to provide advice, support and teaching, and as a basis for input into policy deliberations. Our current international research focuses on the governance of research infrastructures such as biobanks, information law, privacy, data-sharing frameworks, global governance, personalized medicine, and translational research.
Special Issue in BMC Medical Ethics:‘Translation in Healthcare: Exploring the Ethical, Legal and Social Issues’.
Initial publications are now available with more to follow. For details