Cookies on this website

We use cookies to ensure that we give you the best experience on our website. If you click 'Accept all cookies' we'll assume that you are happy to receive all cookies and you won't see this message again. If you click 'Reject all non-essential cookies' only necessary cookies providing core functionality such as security, network management, and accessibility will be enabled. Click 'Find out more' for information on how to change your cookie settings.

PURPOSE: This study examined what men from high-risk breast/ovarian cancer families valued from attending a familial cancer clinic. METHODS: One hundred men from families with a BRCA1 or BRCA2 mutation completed a self-administered questionnaire. RESULTS: Seventy- two percent (72%) of men attended the familial cancer clinic at the request of a family member. Multivariate analyses showed that men with a preference for a collaborative decision-making style (B = -4.651, 95% CI = -9.014 to -0.289, P = 0.04), those with lower levels of education (B = -4.850, 95% CI = -9.16 to -0.537, P = 0.03), and those with higher levels of cancer-related anxiety (intrusion) (B = 0.920, 95% CI = 0.441-1.399, P < 0.001) were more likely to value emotional support from the clinic. Men with a collaborative decision-making style (B = -2.68, 95% CI = -4.91 to -0.467, P = 0.02) were less likely, and those with higher total levels of cancer-related anxiety (intrusion and avoidance) (B = 0.393, 95% CI = 0.008-0.779, P = 0.04) were more likely to value receiving information from the clinic. CONCLUSIONS: A preference for collaborative decision making and cancer-related anxiety predicted men valuing information and emotional support from the consultation. The finding that men's attendance is initiated by family members highlights the value men place on family responsibility.

Original publication




Journal article


Genet Med

Publication Date





434 - 440


Adult, Aged, Aged, 80 and over, Apoptosis Regulatory Proteins, BRCA1 Protein, BRCA2 Protein, Breast Neoplasms, Family Health, Female, Genetic Counseling, Genetic Testing, Humans, Male, Middle Aged, Multivariate Analysis, Mutation, Surveys and Questionnaires