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It is increasingly recognized that effective and appropriate data sharing requires the development of models of good data-sharing practice capable of taking seriously both the potential benefits to be gained and the importance of ensuring that the rights and interests of participants are respected and that risk of harms is minimized. Calls for the greater sharing of individual-level data from biomedical and public health research are receiving support among researchers and research funders. Despite its potential importance, data sharing presents important ethical, social, and institutional challenges in low-income settings. In this article, we report on qualitative research conducted in five low- and middle-income countries exploring the experiences of key research stakeholders and their views about what constitutes good data-sharing practice.

Original publication

DOI

10.1177/1556264615593494

Type

Journal

J Empir Res Hum Res Ethics

Publication Date

07/2015

Volume

10

Pages

217 - 224

Keywords

biomedical research ethics, data release, data sharing, low-income countries, research data, research governance, Biomedical Research, Cooperative Behavior, Data Collection, Developing Countries, Humans, Income, Information Dissemination, Public Health, Qualitative Research, Research Personnel