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The Thailand Major Overseas Programme coordinates large multi-center studies in tropical medicine and generates vast amounts of data. As the data sharing movement gains momentum, we wanted to understand attitudes and experiences of relevant stakeholders about what constitutes good data sharing practice. We conducted 15 interviews and three focus groups discussions involving 25 participants and found that they generally saw data sharing as something positive. Data sharing was viewed as a means to contribute to scientific progress and lead to better quality analysis, better use of resources, greater accountability, and more outputs. However, there were also important reservations including potential harms to research participants, their communities, and the researchers themselves. Given these concerns, several areas for discussion were identified: data standardization, appropriate consent models, and governance.

Original publication

DOI

10.1177/1556264615592388

Type

Journal article

Journal

J Empir Res Hum Res Ethics

Publication Date

07/2015

Volume

10

Pages

278 - 289

Keywords

Thailand, collaboration, consent, data sharing, research ethics, Attitude, Biomedical Research, Cooperative Behavior, Data Collection, Developing Countries, Female, Focus Groups, Humans, Information Dissemination, Male, Perception, Qualitative Research, Research Personnel, Research Subjects, Residence Characteristics, Social Responsibility, Thailand