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AimThe aim of the study was to gain insight into the patients' perceptions of migraine and chronic daily headache (CDH) management.MethodsThirteen, semi-structured and individual interviews with seven migraine and five CDH patients were carried out and analysed in QSR NUD*IST5, using a grounded theory methodology.ResultsThe participants described using five areas of management: 1) health care use; 2) medication use; 3) alternative therapies; 4) social support; and 5) lifestyle and self-help. The participants described their expectations, preferences, worries and (dis)satisfaction in relation to these five areas of management. The participants adapted headache management to suit their needs and preferences, making migraine and CDH management highly individual and giving the headache patient a central role within their own care.ConclusionHealth care is changing towards a greater involvement of the patients in their own care. Therefore, it is important to increase understanding of the patients' perspective of chronic diseases, including migraine and CDH. The results from this study inform health care professionals of the range of their patients' needs and preferences. This knowledge can be used to shape clinical practice, to develop patient education programmes and to further research efforts into issues that are important to the headache patient.

Original publication




Journal article


Scandinavian journal of caring sciences

Publication Date





294 - 303


European Institute of Health and Medical Sciences, University of Surrey, Surrey, UK.


Humans, Headache Disorders, Chronic Disease, Complementary Therapies, Self Medication, Self Care, Health Care Surveys, Adaptation, Psychological, Attitude to Health, Life Style, Nursing Methodology Research, Qualitative Research, Quality of Life, Social Support, Adult, Middle Aged, England, Female, Male, Migraine Disorders, Patient Education as Topic, Surveys and Questionnaires