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Abstract

At the Uganda Cancer Institute, lines often blur between past and present, sickness and health, life and death. Founded in 1967 as a small chemotherapy clinical trials facility in Kampala, today the Institute’s 100+ beds serve a population catchment of over 40 million living in the Great Lakes region of Africa. The Institute houses the only continuous collection of patient records documenting cancer treatment and care on the African continent. As this Institute gets torn down and built back up, so too do longstanding practices of cancer research and care. And with all of these changes at the Institute, there are major questions about what to preserve, what to discard, and what to celebrate. And in particular, what should be “done” with the institutional records and patient records at this site? This talk considers the temporal, methodological, and ethical challenges of preserving patient records at the Uganda Cancer Institute.

Forthcoming events

Exploiting electronic health records to improve infection management

Monday, 03 June 2024, 1pm to 2pm @ BDI/OxPop Building LG seminar rooms

Title TBC

Tuesday, 04 June 2024, 1pm to 2pm @ Richard Doll Lecture Theatre, Richard Doll Building, Old Road Campus, Headington, OX3 7LF

Prevention of Chronic Kidney Disease Progression

Tuesday, 11 June 2024, 1pm to 2pm @ Richard Doll Lecture Theatre, Richard Doll Building, Old Road Campus, Headington, OX3 7LF

Festival of Global Health - Survivors

Wednesday, 12 June 2024, 4pm to 8pm @ Curzon Oxford, Westgate Shopping Centre, Oxford OX1 1NZ

Infectious Disease Epidemiology Unit (IDEU) Symposium 2024

Friday, 14 June 2024, 9.30am to 4.15pm @ Big Data Institute LG seminar rooms